Disparities in Service Access and Waitlists for People with Intellectual and Developmental Disabilities​

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Disparities in Service Access and Waitlists for People with Intellectual and Developmental Disabilities​

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2023

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People with intellectual and developmental disabilities (IDD) most often look to their state IDD agencies to receive long-term supports and services (LTSS). However, access to these services varies significantly by state, and hundreds of thousands of people on LTSS waitlists nationally, some of whom wait more than a decade before being selected for services. Furthermore, while some states have eliminated waitlists and serve more people, this does not necessarily mean there are fewer people with unmet service needs. The Residential Information Systems Project (RISP) is a longitudinal study of LTSS for people with IDD that captures how states differ in access to and waitlists for Medicaid waiver-funded services (the most common type of LTSS). This poster will demonstrate with RISP data the state of LTSS access nationally, as well as differences by state in LTSS access, waitlists, and funding. We will also explain how RISP data challenges the notion that states with fewer people on waitlists have stronger LTSS systems.

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Staff Principal Investigator is Sheryl Larson

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The RISP project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services, Cooperative Agreement #90DNPA0001-05 with supplemental funding from the National Institutes on Disability, Independent Living and Rehabilitation Research Grant #90RT5019. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not therefore necessarily represent official ACL or NIDILRR policy.

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Neidorf, Jon; Begin, Brian. (2023). Disparities in Service Access and Waitlists for People with Intellectual and Developmental Disabilities​. Retrieved from the University Digital Conservancy, https://hdl.handle.net/11299/256007.

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