Families of children with autism spectrum disorder: the role of family-centered care in perceived family challenges
2013-05
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Families of children with autism spectrum disorder: the role of family-centered care in perceived family challenges
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2013-05
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Using Andersen's (1968) behavioral model of health services use as a guiding conceptual framework, this study examined how receipt of family-centered care relates to the perceived family challenges for families of children with autism spectrum disorder (ASD). Data from the 2009-2010 National Survey of Children with Special Health Care Needs (NS-CSHCN) were analyzed for 812 parents of children with ASD. Multiple regression analyses provided substantive statistical evidence that a child's race, the adequacy of a family's insurance, and the stability of child's health care needs significantly contribute to predicting his or her receipt of family-centered care. Further results suggest a relationship between receipt of family-centered care and the perception of challenge for these families; families receiving family-centered care perceive fewer challenges and feel less unmet need for child health services. Family-centered professionals are critical in the development of policies and programs geared toward improving the health outcomes of children with ASD and their families.
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University of Minnesota Ph.D. dissertation. May 2013. Major: Family social science. Advisor: Catherine Ann Solheim. 1 computer file (PDF); ix, 102 pages, appendices A-C.
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Reinke, Jennifer Sue. (2013). Families of children with autism spectrum disorder: the role of family-centered care in perceived family challenges. Retrieved from the University Digital Conservancy, https://hdl.handle.net/11299/154212.
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