Long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2020
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Long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2020
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2024-12-01
Publisher
Institute on Community Integration
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Technical Report
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Description
Nearly three-quarters of people with intellectual or developmental disabilities (IDD) who receive publicly funded support live at home with family members or in their own homes, this report from the Residential Information Systems Project (RISP) shows. This represents a dramatic shift over several decades away from institutional living for people with IDD. The new report includes data through the end of June 2020, noting a sharp increase in death rates among people with IDD, particularly those living in institutions, during the earliest months of the COVID-19 pandemic. Researchers use the full report to provide context for their peer-reviewed and professional articles and by policymakers and advocates to inform national and state policy. Digital copies of the report are available at https://risp.umn.edu/. The survey instrument and the definitions used are available.
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This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health, and Human Services Cooperative Agreement #90DNPA0006 with supplemental funding from the National Institutes on Disability, Independent Living and Rehabilitation Research Grant #90RTCP0011. Grantees undertaking projects under government sponsorship are encouraged to freely express their findings and conclusions. Points of view or opinions do not therefore necessarily represent official ACL or NIDILRR policy.
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Doi identifier
10.13140/RG.2.2.23380.10883
Previously Published Citation
Larson, S.A., Neidorf, J., Begin, B.C., Pettingell, S., Sowers, M. (2024). Long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2020. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.
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Larson, Sheryl; Neidorf, Jonathan; Begin, Brian; Pettingell, Sandra; Sowers, Mary. (2024). Long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2020. Retrieved from the University Digital Conservancy, 10.13140/RG.2.2.23380.10883.
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