Browsing by Subject "Medication experience"

Now showing 1 - 3 of 3
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    The medication experience of African-American women living with kidney-related diseases: A phenomenological inquiry
    (2023-07) Hillman, Lisa
    Chronic kidney disease affects 37 million Americans (14.0%), results in poor quality of life and mortality, is costly for the US Healthcare system and disproportionately impacts Black Americans. The optimal time to intervene in the course of chronic kidney disease is early, making treatment of the disease and risk factors, often with medications, a priority. The African-American woman’s lived experience lies at the intersection of race, gender, and other relevant social factors impacting medication use. Knowledge of the experience of medication taking of these women in the context of their everyday lives may shed meaningful insight into person-centered interventions aimed to improve patients’ use and experience with medications. Objectives are (1) Explore the medication experiences of African-American women taking medications for chronic diseases related to chronic kidney disease, and (2) Reveal individuals’ prioritization of medication-related decisions in the context of their everyday lives. A phenomenological approach was undertaken. One-on-one interviews were conducted with seventeen African-American adult women taking at least one medication for chronic kidney disease or a chronic disease that places them at high risk (hypertension or diabetes mellitus) for chronic kidney disease. The existential structures of the lifeworld as described by French Philosopher Merleau-Ponty were used to guide thematic analysis of data and was based in traditions of phenomenology. Five themes of (1) guided by a personal agency with medications, (2) sense of personal duty to care for self and others, (3) making sense of the body and self with medications, (4) staying on track with medications and with life, and (5) desire to living freely with medications and from their constraints are described. Priorities with medication taking behaviors in daily living experience were revealed to be: (1) safety and security, (2) singularity of experience, and (3) autonomy and vitality. Patient-centered care needs to consider the patient and their medication taking from the perspective of their priorities and daily living. Health care professionals need to practice self-awareness and listen attentively to understand the experiences their patients have with their medications. Knowledge of the medication experience can then inform strategies and interventions that are meaningful to patients.
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    The medication experience of people living with HIV: From the understanding of the meanings of medication to the development of a conceptual framework of medication experience.
    (2012-06) Alves, Mateus Rodrigues
    This is a study investigating the medication experience of people living with HIV/AIDS and the influences on the patient's relationship with medications. The study was conducted from April 2011 to April 2012. The methodology of investigation was Grounded Theory. The methods included one-to-one in-depth interviews, journaling, and observations. The participants in the study were nine people living with HIV. The results suggest that there are two dimensions of experiences associated with HIV drug therapy. One is the life disruption and the other is the meaning that the patient ascribes to medications. The results of this study are presented as a theoretical visual model. The model intends to show the complexities of living with HIV and the factors influencing the patient's relationship with medications in HIV drug therapy. The author recommends the use of narratives in patient care as a standard practice to understand the patient's medication experience. In addition, the proposed model can be used as a pedagogical tool to teach students in the health care disciplines as it portrays the complexities involved in HIV medication taking in a relatively simple manner. The findings of this study contribute to the illness experience as well as medication experience literature. Lastly, the proposed model can be applied to other illness contexts in which the use of medications is a key strategy for improving the patient's quality of life.
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    Understanding the meaning of medication experience among limited English proficient (LEP) Oromo patients in Minnesota
    (2013-05) Omar, Moustapha Abdulahi
    Based on Title VI of the 1964 Civil Rights Act, immigrants who speak English "less than very well" are entitled to professional language access services (LAS) and all health care providers, including pharmacies, are required to provide such services. However, many pharmacies are not currently complying with these laws. The main purpose of this study is to understand the meaning of the medication experiences among Limited English Proficient (LEP) Oromo patients in Minnesota. Major objectives of this study are: 1) to have a deeper understanding of the lived medication experiences of the research participants, 2) to describe the meaning of these experiences from the perspectives of the participants, and 3) to develop the data into themes and interpret them to uncover the deep, pre-reflexive meaning they attach to their medication experiences.This research follows Max van Mennen's hermeneutic phenomenological methodology to describe and interpret the meaning of the medication experiences of the research participants based on their subjective lived experiences. Interviews were conducted in the Oromo language, taped and transcribed in the Oromo language, and translated into English. In addition to applying hermeneutic phenomenological reflection, the text was analyzed using the holistic, selective, and detailed or line-by-line approaches to explicate essential themes. The data were transformed into text by separating essential themes from incidental themes, and developing the essential themes into text following van Manen's guidelines.The results of the data analysis were organized into six major themes under the heading of research findings in chapter nine (9) as follows: 1) beliefs regarding causes of diseases, 2) beliefs regarding the use of medicine, 3) beliefs regarding diseases that cannot be cured by western medicine, 4) love and hate relationship with prescription medications, 5) mistrust of American health care system, and, 6) lack of communication with their pharmacists. Based on the above six themes, some common characteristics that are unique to the Oromo culture and other characteristics that may be universal to all immigrants were drawn as conclusions and described in chapter nine (9). Finally, discussion of these findings and specific recommendations were given in chapters 10 and 11 respectively.