Education to Employment: Exploring Common Transition Support Experiences and Outcomes among Filipinos and Americans with Intellectual and Developmental Disabilities (IDD) A Thesis SUBMITTED TO THE FACULTY OF THE UNIVERSITY OF MINNESOTA BY Rose Marie Jane A. Rementina IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF MASTER OF ARTS Professor Jennifer McComas, Advisor 2025 © Rose Marie Jane A. Rementina, 2025 i Acknowledgments Thank You, Lord, for the grace of getting me through. I succeeded because of You. I still do not claim this wisdom. Everything came from You. I am also in full gratitude for the scholarship grants that allowed me to achieve this significant milestone of having a degree in Master of Arts in Special Education: the Fulbright Commission of the Philippines, International Teacher Education of Alpha Delta Kappa (AΔK) Foundation, Inc., and the University of Minnesota Twin Cities. You are all instrumental in supporting my dream, which I have spent more than three years praying for. From the bottom of my heart, thank you very much! Enduring the joys and pain as an international student, I thank my twin moms and their supportive husbands, Mary & Fred Abuan, and Kathi & Jim Treston. Thank you MN Alpha Alpha chapter, Mary & Gordon Schultz, Sharon & Len Copt, Diana & John Vasicek, Judy & Morris Tate, Barbara Eason, Mary Jo Heller, Millie Gardner & Bryan Williman, and to all other AΔK sisters who guided me holistically in graduate school. I am also hugely grateful for the exceptional support of my advisor, Professor Jennifer McComas, for the tremendous encouragement, constant check-in, and all the efforts and feedback from the Institutional Review Board (IRB) application, regular meetings, funding applications, to research writing and dissemination. I am beyond blessed with your gentle and helpful guidance, which has made me succeed. Thank you! Lastly, I’d like to share my wholehearted thanks to the following who made this study fruitful and my graduate school life meaningful: ii • Dr. Renáta Tichá & Dr. Noro Andriamanalina for their immensely helpful feedback and guidance, and for being part of my oral examination committee; • Dr. Michael Beckstrand for sharing his research method expertise; • The Educational Psychology Department of the College of Education and Human Development for supporting me in funding my research as well as my participation in professional development conferences; • My study participants and some of their legally authorized representatives/guardians who provided their substantial inputs in this study; • The CARE ABA Lab, organizations, offices, and individuals who helped in sharing my study with their clients or network to participate in the study; • The Hospitality Center Student Group, the College of Education & Human Development International Student Community (CISC), and the Master Gardener Program community, which served as my safe space beyond academic settings, and allowed me to have a platform to express my heart for servant leadership; • My Mama Marilyn and Papa Restituto, and my siblings Xer and Ate Karen, for continuously praying for my journey and ensuring my good health and safety; • My best friends Tricia and Christian, and my Teach for the Philippines colleagues JC and Caleb, for providing me with emotional support and technical inputs; and, • My fiancé, Mel, who significantly and selflessly supported me every single day and night, listening and offering the comfort of company and affirming care when I am at my lowest, highest, or somewhere in between. To everyone I met in this short but memorable journey in the US, and who generously imparted their thoughtfulness and wisdom — Thank you! iii Dedication I offer this study to my previous students and their families in Barangka Elementary School Transition Class, School Year 2018-2020 in Marikina City, Philippines, who ignited the passion in me and allowed me to find my purpose in this career. You are not just my “why” in this profession, but you are all part of who I am and who I will become. At the least that I can do, I also dedicate this to students with disabilities and the whole disability community and their champions to provide the relevant resources and strategies to facilitate their smooth transition from school to work. Like anyone else, all individuals with disabilities deserve to live productively and achieve fulfillment within their lifetime. I also put forth this study for my fellow collaborators in this field—educators, administrators, school personnel, businesses, government employees, development workers, and private individuals—to fully participate in the mission of providing a more inclusive climate for people with disabilities across all settings. Ultimately, I dedicate this study to my Lord Jesus… That “whatever I do, I should do it heartily, as unto the Lord,” whom should I serve. iv Abstract Although employment facilitators and barriers are well-defined in the transition literature, accounts of individuals with intellectual and developmental disabilities (IDD) on the responsiveness of employment-related activities, services, and social support while navigating systemic barriers are rarely discussed. This study aims to describe the transition experiences of employed Filipinos and Americans with IDD during their education to employment journeys to better understand how they perceived the transition preparation they received and identify the support pathways and outcomes in their transition from school to work. Using phenomenology, five themes emerged, namely, (a) helpful employment preparation activities and resources, (b) doors to employment, (c) social capital as support system, (d) inclusion barriers, and (e) inclusive workforce experience and outcome. The study results allow shared learning on the success of employed individuals with IDD in the Philippines and the US, and specify the stakeholders’ relevant roles in providing responsive transition and workplace support. Keywords: transition, employment, intellectual and developmental disabilities, Philippines, USA v Table of Contents Acknowledgments .............................................................................................................i Dedication ..........................................................................................................................iii Abstract ..............................................................................................................................iv Table of Contents ...............................................................................................................v List of Tables ...................................................................................................................viii List of Figures ....................................................................................................................ix List of Abbreviations .........................................................................................................x Chapter 1: Introduction .......................................................................................................1 Background..............................................................................................................1 Problem Statement……...........................................................................................4 Purpose Statement…………………........................................................................7 Research Question...................................................................................................8 Significance of the Study.........................................................................................9 Definition of Terms................................................................................................10 Chapter Summary..................................................................................................12 Chapter 2: Literature Review.............................................................................................13 Transition Stakeholders and Services....................................................................13 Facilitators of Employment Outcomes..................................................................14 Barriers to Employment Outcomes........................................................................23 Transition and Employment Experiences of Individuals with IDD.......................30 Chapter Summary..................................................................................................38 vi Chapter 3: Methodology....................................................................................................39 Purpose of the Study and Research Questions.......................................................39 Research Design and Rationale.............................................................................39 Philosophical Assumptions....................................................................................40 Ethical Considerations...........................................................................................41 Settings and Participants........................................................................................42 Data Collection Tools and Procedure....................................................................44 Data Analysis.........................................................................................................46 Data Validity..........................................................................................................47 Chapter Summary..................................................................................................48 Chapter 4: Findings ...........................................................................................................49 Helpful Employment Preparation Activities and Resources.................................52 Doors to Employment............................................................................................59 Social Capital as Support System..........................................................................64 Inclusion Barriers...................................................................................................68 Inclusive Workforce Placement & Outcomes........................................................74 Chapter Summary..................................................................................................82 Chapter 5: Discussion........................................................................................................83 Practical Implications and Recommendations.......................................................87 Limitations.............................................................................................................96 Conclusion.............................................................................................................98 References ....................................................................................................................... 99 vii Appendices ..................................................................................................................... 117 Appendix A: Participant Demographic Questionnaire....................................... 117 Appendix B: Interview Questions………………………................................... 119 Appendix C: Recruitment Poster Sample........................................................... 121 Appendix D: Consent Form Sample .................................................................. 122 Appendix E: Assent Form Sample ......................................................................128 Appendix F: International Consent Form Sample...............................................131 Appendix G: IRB Research Approval................................................................ 136 viii List of Tables Table 1. Participant Demographics………………………………………………………42 Table 2. Interview Protocol Excerpt…………………………………………………..…45 Table 3. Themes and Subthemes………………………………………………………...49 Table 4. Employment Preparation Activities…………………………………………….53 Table 5. Civic Institution and its Support Services during Transition…………………...58 Table 6. Employability Skills……………………………………………………………61 Table 7. Social Capital Roles…………………………………………………………….65 Table 8. Societal Barriers………………………………………………………………...71 Table 9. Employment Retention Support………………………………………………...75 Table 10. Contextual Adaptation of the Operational Model towards Inclusive Employment and Outcomes in the Philippines…………………………………………..94 Table 11. Contextual Adaptation of the Operational Model towards Inclusive Employment and Outcomes in the USA…………………………………………………96 ix List of Figures Figure 1. Interpretive Model on What Support from Education to Employment Looks Like………………………………………………………………………………………51 Figure 2. Operational Model on Transition Support towards Inclusive Employment and Impact……………………………………………………………………………………88 x List of Abbreviations Americans with Disabilities Act (ADA) Intellectual and Developmental Disabilities (IDD) Career and Technical Education (CTE) Centers for Independent Living (CIL) Competitive Integrated Employment (CIE) Customized Employment (CE) Department of Labor and Employment (DOLE) Department of Social Welfare and Development (DSWD) Public Employment Service Office (PESO) Technical Education and Skills Development Authority (TESDA) Individualized Education Program (IEP). Individuals with Disabilities Education Act (IDEA) Pre-Employment Transition Services (pre-ETS) Supported Employment (SE) Vocational Rehabilitation (VR) Workforce Innovation and Opportunity Act (WIOA) United States (US) 1 Chapter 1: Introduction Background The U.S. Individuals with Disabilities Education Act (IDEA) of 2004 stipulates that educational institutions must offer transition planning and services as part of the students with disabilities’ individualized education program (IEP) at age 16 or younger, if warranted, to prepare them for “postsecondary education, vocational education, integrated employment (including supported employment), continuing and adult education, adult services, independent living, or community participation” (IDEA, 2024; 34 C.F.R. § 300.43, 2024, p.21). In collaboration with schools, under the Workforce Innovation and Opportunity Act (WIOA) of 2014, students with disabilities who qualify or may be eligible for vocational rehabilitation (VR) services can also undergo some activities under the pre-employment transition services (pre-ETS) such as “(i) job exploration counseling; (ii) work-based learning experiences, which may include in- school or after school opportunities, or experience outside the traditional school setting (including internships), that is provided in an integrated environment in the community to the maximum extent possible; (iii) counseling on opportunities for enrollment in comprehensive transition or postsecondary educational programs at institutions of higher education; (iv) workplace readiness training to develop social skills and independent living; and (v) instruction in self-advocacy (including instruction in person-centered planning), which may include peer mentoring (including peer mentoring from individuals with disabilities working in competitive integrated employment)” (Rehabilitation Act of 1973, 34 C.F.R. § 361.48, 2024, p.334). These do not substitute the school’s transition 2 services but are mandated to be provided by VR agencies to improve post-secondary education or employment outcomes among students with disabilities (National Technical Assistance Center on Transition: The Collaborative, n.d.). Similarly, in the Philippines, the Magna Carta for Disabled Persons or Republic Act No. 7277 mandates learning institutions provide quality education and vocational or technical education for all students with disabilities to increase their independent living and employment skills, while the Department of Social Welfare and Development (DSWD) is mandated to provide vocational trainings, guidance, and counseling (Republic Act No. 7277, 1992). In 2005, the Department of Education (DepEd) implemented the transition program and later rolled out its K to 12 Transition Curriculum for Learners with Disabilities in 2020 which was required under the Enhanced Basic Education Act of 2013 and highlights individualized transition planning to prepare every student who has a disability for post-school opportunities like employment, entrepreneurship, further education, and independent living in the community (Department of Education, 2020). In collaboration with DepEd, under Republic Act No. 11650 (2022) or An Act Instituting a Policy of Inclusion and Services for Learners with Disabilities in Support of Inclusive Education, which emphasizes the inclusive education and services for all students with disabilities, is the Department of Labor and Employment (DOLE) in co-creating training programs to support the transition from school to employment including job coaching. Other agencies such as the Technical Education and Skills Development Authority (TESDA) and Public Employment Service Office (PESO) support technical and 3 vocational training, and facilitate job placements and pre-employment counseling, respectively. After going through these sets of activities under school supervision, students with disabilities are set to explore appropriate post-school opportunities like employment. The most recent US data showed that out of 464,000 students aged 14-21 years or a little over 6% of the whole student population served under IDEA (7.3 million), 74% of them received a regular high school diploma, followed by 15% dropping out, and others receiving alternate certificate or aging out of IDEA services (between 20-22 years old; National Center for Education Statistics, 2023, 2024). In the Philippines, students with disabilities exit basic education at the age of 24 years old (Department of Education, 2020), but there is a lack of official DepEd data on those who finish school. Available information from the Philippine Statistics Authority (2016) indicates that 16.6% of individuals with disabilities did not even finish elementary school, which is far from 6.9% of those without disabilities who did not finish elementary school. Moreover, only 21% of individuals with severe disabilities have finished high school, in contrast to 30% of those without disabilities who finish high school. With the reality that students with disabilities transition out of school without completing transition and employment preparation programs, there are pressing concerns in terms of employment rate despite laws that protect them against employment discrimination such as the Americans with Disabilities Act (ADA), WIOA, and Rehabilitation Act in the US and the Magna Carta for Persons with Disability (Republic Act No. 7277 & 10524) in the Philippines. For example, it was reported by the U.S. 4 Bureau of Labor Statistics (2025) that there are huge disparities in employment rates between persons with and without disabilities, with the percentage of employed individuals with disabilities lower (22.7%) than those without disabilities (65.5%) in 2024. This is also the same trend in the Philippines where the most recent available data showed that only 19% of individuals with disabilities are employed (Philippine Statistics Authority, 2016). Globally, the median unemployment rate from more than half of the countries with available data is 7.6% for those with disabilities, while it is 6.0% for those without disabilities (International Labour Organization, 2022), implying individuals with disabilities face more challenges to obtaining employment compared to those without disabilities. This data reflects people with various disabilities, excluding those not seeking work (such as those receiving disability benefits or equivalent support) and those classified as underemployed (such as working on limited hours per week). Having these education and employment contexts and mandates as the context for individuals with disabilities moving from the school to employment settings, I will explore more on the challenges surrounding this phenomenon that motivated this study. Problem Statement Adults with intellectual disabilities (ID) face a disturbingly lower employer rate, more than twice as low, and even lower wages than their peers without disabilities (Siperstein et al., 2013). Relatedly, individuals with autism have described looking for a job that is suitable to them as highly challenging (Hedley et al., 2021). In the Philippines, 78% of individuals with disabilities do not have a job or join the informal sector (e.g., those working without job contracts or benefits and have less job stability). Of those 5 individuals with disabilities who apply for a job, 34% report having a hard time applying for and securing jobs (Philippine Statistics Authority, 2016), an indication that there are barriers to accessing employment. Moreover, when looking into the accounts of individuals with IDD, some of them mentioned that school has not prepared them competently for their current employment; hence, they experience difficulty maintaining it (Gilson et al., 2022; Sigstad & Garrels, 2022). Transition stakeholders like families, students, and teachers, also report that the programs available are not aligned with their interests or needs (Scott et al., 2021; Benson et al., 2021; Villareal et al., 2022). Despite learning institutions and community agencies being mandated to provide transition services and support in their goals after school, the quality and responsiveness to the youth with disabilities’ needs may vary, potentially affecting the huge difference in post-school employment success relative to their non- disabled peers. For example, in the US, according to Trainor and colleagues (2020), there are diverse student needs and goals that may be too complex to address due to varying school policies and resources, and the wider educational and societal landscapes within which transition services and systemic discriminations may co-occur. Moreover, there is a vague understanding of how schools interact with state agencies and community programs; hence, challenges in navigating multiple educational and community organizations to obtain services and gaps in professionals’ readiness to ensure individualized and inclusive transition support. There are also concerns regarding the lack of involvement of youth with disability and their parents during the selection of transition 6 services (Best & Burke, 2024), and the neglect to recognize the experiences of youth with intersecting identities when transition strategies do not directly address systemic issues like ableism, sexism, and racism (Scott & Shogren, 2023). Other challenges include the level of gender-related support and expectations of immediate family members for young male adults with disabilities which are lower than expectations of females, as well as women with disabilities having a lower rate of employment compared to men with disabilities (Lindstrom et al., 2011). Moreover, those participating in competitive integrated employment were those in majority, particularly identified as male and white individuals (Osmani et al., 2022). In the Philippines, according to De Arao & Fontanilla (2024), some factors that affect the quality implementation of transition programs are the teachers’ level of competence to facilitate students’ transition and the lack of collaborative efforts among the education and community stakeholders. Moreover, there are limited resources, funds, and classroom facilities to appropriately deliver transitional support. Negative stereotypes have also been emphasized, such as low expectations and least educational priority among students with disabilities, limiting their access to other opportunities, especially employment. In addition, there are also missing policies and lack of guidance and understanding on implementing the transition programs, gaps in curriculum, assessment tools and learning materials, and lack of teachers and teaching assistants (Pawilen et al., 2018). Generally, having a disability and the negative attitudes from their families still cause the students with disabilities to have limited community, social, or religious participation (Marella et al., 2016). 7 Aside from literature gaps in employment preparatory experiences within the school and community, there is also a lack of exploring the roles of youth with disabilities' social capital to employment (Trainor et al., 2020; Petner-Arrey et al., 2016), which is their existing, immediate, and critical resource. Given these concerns at the systems level, this study aims to consider how individuals with intellectual and developmental disabilities (IDD) in the Philippines and US were able to navigate the transition phase and successfully obtain jobs and thrive as gainfully employed adults. Purpose Statement The purpose of this phenomenological study is to describe the transition experiences of currently employed Filipino and American individuals with IDD from their education to employment journeys to develop a clearer understanding of how they perceived the transition activities they experienced and identify the support pathways that led them to gain employment and enjoy its outcomes. There are 23 secondary transition predictors of post-school success identified by Mazzotti and colleagues (2021) and some of them, such as self-determination/self-advocacy, social skills, independent living skills, travel skills, youth autonomy/decision-making, and technology skills can be enhanced through coordination of activities in school and other settings. However, other predictors of success are external factors that may be beyond an individual's control or be limited in some of the schools’ resources or capacities; therefore, the community members such as families, agencies, and employers play a vital role in providing these learning or employment opportunities (Schutz & Carter, 2022). For instance, when employers open opportunities, whether paid or not, they can help facilitate access to employment services 8 among individuals with severe intellectual disability (Pickens & Dymond, 2022). Considering the intersecting self, school, and community factors throughout the transition process, this study seeks to bridge the gap between education and employment by examining the experiences of employed individuals with IDD who successfully navigated job or career exploration and by exploring the relevant resources or personal and community assets they utilized within and outside school settings, and identifying which aspect of employment outcome means the most to them. Research Question This study was designed to ascertain directly from employed individuals with IDD what preparation activities were helpful for them, considering several social or individual factors that can influence their access to post-school employment. According to Trainor and colleagues (2020), an area for further study is understanding how the mix of services and support during and after high school can influence different outcomes; hence, the importance of amplifying the voices of persons with IDD in this context to fully understand what combinations of their formal or informal support activities allowed them to gain part-time or full-time jobs and how this currently affects their life trajectories. Moreover, there is also a need to explore what is most meaningful for culturally responsive and sustaining transition services within school and after (Scott & Shogren, 2023). Given the aim of this study to explore the relevant experiences of persons with IDD that prepare them to achieve post-school employment success, an overarching research question and subquestions were developed: What does support from education 9 to employment look like based on the experiences of employed individuals with intellectual and developmental disabilities? 1. What preparation activities effectively supported the post-school employment success of persons with intellectual and developmental disabilities? 2. How were individuals' strengths, needs, and culture addressed during preparation and employment activities? Significance of the Study Within the area of transition studies, the most suitable transition practices for particular student subgroups have not been identified yet, and the relationship between the individual, their community, and the supports or services they receive during their transition within school and community is not studied enough (Trainor et al., 2020). There is also a lack of studies examining transition in an international scale as well as exploring what individuals with IDD themselves experienced that contribute to their post- school success (Šiška et al., 2024; Schwartzman et al., 2025). Acknowledging different factors or activities that can influence access to employment, meaningful transition activities and support based on the perspectives of individuals with IDD from developing and developed countries, such as the US and Philippines, may vary and have not yet been deeply explored; thus, a need for in-depth understanding of their experiences (Schutz & Carter, 2022). Considering the individual characteristics of each person with disability and the different contexts with unique home, school, and community resources and family or social dynamics, the study aims to provide realistic approaches that can be contextualized by educators, families, employers, policy-makers, and other essential 10 community stakeholders to promote culturally-responsive programs and social network support in the transition of individuals with IDD from school to work. This will also address a gap in the literature regarding the factors that promote shared learning between these contexts and diverse demographics regarding transition support; hence, useful and equity-focused transition support strategies can hopefully be developed across cultural settings. Ultimately, the lessons here will provide insights among individuals with disabilities on practical experiences to gain jobs, hopefully leading to increased employment rates among the disability community which can significantly lead to an individual’s sense of purpose and worth (Gilson et al., 2022). Definition of Terms Competitive Integrated Employment (CIE) is defined as a part-time or full- time job by an individual with disability who gains benefits, privileges, and salary within or above minimum wage aligned to their colleagues without disabilities that perform the same duties (Rehabilitation Act of 1973, 29 U.S.C. § 705(5), 2014). Intellectual and Developmental Disability (IDD) is “a developmental condition characterized by significant deficiencies in intellectual functioning and adaptive behavior”. Comorbidities include “autism spectrum disorder, seizure disorder, attention deficit disorder, anxiety, cerebral palsy, vision disorders, hearing loss, depression, and Down Syndrome” (Bartoshesky & Wright, 2021, para. 1 & 3). Interagency Collaboration refers to “a developmental process that involves multiple agencies working together in business, health, social services, and 11 education partnerships” (Johnson et al., 2003, as cited in Noonan, 2014, p. 2). Self-advocacy is defined as an individual’s ability to assert one’s decisions and be able to effectively advocate for one’s rights and empower others (Pennell, 2001). Self-determination means the ability to identify personal wants and make decisions and efforts independently to achieve those goals (Pennell, 2001). Sheltered Workshop is a working facility where individuals with disabilities are provided maximum support in job performance (Shkurkin, 2023). Social Capital refers to a person’s “function of membership in families, groups, and communities” that facilitates access to information and opportunities (Trainor et al., 2020, p. 12). Transition in this study means a change or a movement from one setting to the other, particularly from school to employment setting. Transition Services is defined as “a coordinated set of activities that (A) is designed to be within a results-oriented process, that is focused on improving the academic and functional achievement of the child with a disability to facilitate the child’s movement from school to post-school activities, including post-secondary education, vocational education, integrated employment (including supported employment), continuing and adult education, adult services, independent living, or community participation; (B) is based on the individual child’s needs, taking into account the child’s strengths, preferences, and interests; and (C) includes instruction, related services, community experiences, the development of employment and other post-school adult living objectives, and, when appropriate, 12 acquisition of daily living skills and functional vocational evaluation” (IDEA, 34 C.F.R. § 300.43, 2024, p.21). Transition Planning is a process of putting the transition statement “beginning not later than the first IEP to be in effect when the child is 16, or younger if determined appropriate by the IEP Team, and updated annually, thereafter, the IEP must include—(1) appropriate measurable postsecondary goals based upon age appropriate transition assessments related to training, education, employment, and, where appropriate, independent living skills; (2) the transition services (including courses of study) needed to assist the child in reaching those goals” (IDEA, 34 C.F.R. § 300.320(b)(1)-(2), 2024). Chapter Summary This study aims to address a relevant and common challenge among individuals with IDD in the US and the Philippines which is unemployment. Although there are some policies and programs in place regarding preparation of individuals with IDD to employment, there are various support pathways which this study is aiming to explore deeper. Thus, it is important to hear from the individuals with IDD who are successfully employed on what support really means to them based on their experience in terms of preparation and transition for post-school work as well as any other factors that may be relevant to their employment success. 13 Chapter 2: Literature Review Transition Stakeholders and Services From education to employment settings, some transition services in the US such as transition assessment and planning, coordination of work experience, vocational assessment and employment planning, job training and coaching, instruction in self- determination, information on community resources, job referrals, and accommodation support are provided to individuals with disabilities through the collaboration of various professionals. Collaborating professionals may include but are not limited to high school special educators, transition specialists, VR counselors, Centers for Independent Living (CIL) professionals, and rehabilitation professionals (Oertle et al., 2013). School districts are not directly responsible for job placement among students with disabilities but are required to provide appropriate transition planning to support relevant links to different agencies for post-secondary opportunities (Etscheidt, 2006). In 2014, a more formalized interagency collaboration between schools and VR was enacted under the WIOA through pre-ETS to promote CIE, and it was recommended to have VR professionals attend transition meetings, encourage inclusive education and participation in work-based learning experiences such as part-time work or internships, provide more opportunities for students to exercise setting goals, making decisions, and lead IEP meetings to increase self-determination and offer counseling on post-secondary options which are all linked to improve employment outcomes (Taylor et al., 2019). When students get individualized transition planning and support from professionals and family, 14 complemented with work experience that enhances their work ethics and responsibility, the chances for post-school placement are increased (Lindstrom et al., 2011). In the Philippines, although schools and some government agencies are identified under the Inclusive Education Act (Republic Act No. 11650) to support transition, special education teachers and parents serve as active stakeholders in the transition programs. For example, in a study by Villareal and colleagues (2022), teachers facilitated online learning to students during the COVID-19 pandemic while also teaching parents who assisted in instruction, behavior management, and assessment at home. Parents also seek support from other family members in supporting the learning. Other stakeholders include general education teachers or skilled community volunteers from any type of business or industry that help support the career awareness and work skills of students with disabilities (Quijano, 2007). Meanwhile, there are non-profit organizations and private rehabilitation centers who step up during the transition process out of community need, even though they are not official partners of schools (Paguio, 2021). Facilitators of Employment Outcomes In this paper, the facilitators that led to employment outcomes include research- based practices, programs, or activities in the school and community supporting employment, and informal support systems that individuals with IDD had in school and after. Given the immense research available in the transition process, this literature review aimed to discuss the available literature in the Philippines and US, but if insufficient, relevant literature from Canada and Norway were included. 15 In-school predictors and preparation activities for employment outcomes High School Predictors. In 2013, Simonsen and Neubert followed recently transitioned youth with IDD receiving funding from a state’s developmental disability agency within 18 months after school exit to assess which of the following predicted community employment – “(a) integrated employment, (b) other community work, and (c) sheltered or nonwork activities” (p.190). They found that “family-expressed preference for paid work in the community, paid work experience, and self-management and community mobility skills” (p. 88) facilitated work outcomes, but race or ethnicity had the potential to impact employment participation. Five years later, in a scoping review by Southward and Kyzar (2017), they specified predictors of competitive employment after high school and identified paid work experience in secondary school as the most significant predictor that consequently heightened family expectations. Other predictors included vocational training, completion of high school, IEP transition goals related to competitive employment, self-determination, and involvement in postsecondary education. Years later, a systematic literature review by Mazzotti and colleagues (2021) then identified 23 transition predictors of post-secondary outcomes, including employment, post-secondary education, or independent living. These included “career and technical education (CTE), exit exam/high-school diploma status, goal-setting, inclusion in general education, paid employment/work experience, parent expectations, program of study, self-care/independent living skills, self-advocacy/self-determination, social skills, student support, transition program, work study, youth autonomy/decision-making, career 16 awareness, community experiences, interagency collaboration, occupational courses, parent involvement, travel skills” (p.51), psychological empowerment, self-realization, and technological skills. These predictors are categorized in order of effectiveness as evidence-based, research-based, or promising, with Career Technical Education (CTE) as the only evidence-based predictor for post-secondary employment. In contrast, Flexer and colleagues (2011) found that this does not directly apply to youth with IDD or African American youth receiving CTE due to some factors such as unavailability of jobs or mismatch with career goals; hence, the importance of considering their context and specific needs. Most recently, CTE programs have been found to not provide relevant support for students with IDD (Šiška et al., 2024). Notably, the identified predictors were established without exploring qualitative studies, which this current research seeks to further examine. Related to the predictors above are research-based practices related to employment identified by Rowe and colleagues (2021) such as person-centered planning where family meetings and training were conducted to pursue career planning and implementation, and using a curriculum called Working at Gaining Employment Skills (WAGES) which teaches social and occupational skills in the workplace. Moreover, in an American high school, various stakeholders were interviewed by Schutz and colleagues (2023) to identify what facilitates access to paid work, where parents, special educators, adult agency staff, employers, and school district leaders mainly emphasized providing community-based work experiences to be able to apply the needed skills in an actual work set-up, and having a tight collaboration or sustained partnerships with employers, 17 families, pre-ETS and VR providers, community organizations, and schools. This collaboration was specifically highlighted by parents of youth with IDD appreciating schools requesting for their IEP input and staff having high expectations of their child (Benson et al., 2021). Interestingly, expectations from teachers have also been found as closely related to post-school employment more than parents’ expectations (Holwerda et al., 2015). Other facilitating factors for employment were identified by Schutz and colleagues (2023) suggesting to increase: (1) training among providers supporting job access, (2) participation and employment expectations of families, (3) disability awareness of employers for recruitment and perspective-change, (4) vocational preparation offered either in diploma pathway (e.g., core subjects and work-based learning) or gaining both college credits in high school and internships, (5) work experience on-campus or through a simulation lab, (5) career awareness through career planning, soft skills training, job application support, and self-determination instruction, (6) dedicated transition staff for school or community concerns, (7) transportation and instruction, and (8) individualized support for assessment, job-matching, and person- centered planning. Given these four studies focused on secondary education, recurring predictors or facilitators included family’s expectations and involvement and paid work/community experience. Personal strengths that served as predictors included travel skills, self- determination/self-advocacy, self-management or self-care/independent living skills. Educational factors that served as predictors included high school education, vocational 18 training/occupational courses, transition programs implemented with person-centered planning, interagency collaboration, and student support that consisted of career counseling, career awareness, or job search assistance or referrals (Simonsen & Neubert, 2013; Southward & Kyzar, 2017; Mazzotti et al., 2021; Schutz et al., 2023). Post-secondary Education Facilitators. At the higher education level, a college- based transition program in the US was assessed by Papay and colleagues (2023) to identify which types of employment preparation activities led to employment. Several activities were mentioned such as unpaid career development experiences (volunteering, unpaid internships, work training, and service learning), career-related course enrollments, and employment-related program supports by various providers such as local education agency staff, state vocational rehabilitation staff, career services staff, peer mentors or supports, and state IDD agency staff. Similar to the previous study findings, paid employment and work training were highly predictive of employment outcomes. Likewise, employment-related transition support services were also identified by Petcu and colleagues (2015) in post-secondary education settings like career or vocational counselling, person-centered planning, career or vocational assessment, career exploration, natural supports such as coworker and supervisor, education on starting a paid job and moving between roles, and self-advocacy. They also found that four-year higher education institutions offer more work-based training than two-year colleges which can be related to a finding from Grigal and colleagues (2019) that pursuing longer higher education increases chances of gaining a paid job up to 90 days post-exit the said 19 transition program in college. Nonetheless, Barnard-Brak and colleagues (2023) found that having skills and being able to perform job-specific tasks is the strongest predictor regardless of the individual’s severity of disability. Philippine Transition Curriculum. When looking at the transition literature in the Philippines, programs and predictors are not extensively studied yet; but it was found in a discussion paper that having a high school education and being a member of disability self-help organizations increases probability of getting employed (Mina, 2010). Moreover, there was a study by Cabatan (2004) that identified factors that influence post- school opportunities, and found that early-stage planning, collaboration among service providers, family and friends support, and previous training in different contexts facilitate it. In 2005, a Philippine transition program model was developed in the country focusing on “daily living skills, occupational guidance and preparation, and personal and social skills” (Quijano, 2007, para. 1), and was later expanded by Pawilen and colleagues (2018) with a curriculum proposal focusing on (1) academic curriculum promoting participation in inclusive classrooms or alternative learning system, (2) pre-vocational curriculum enhancing job seeking skills and work ethics, (3) livelihood skills targeting for vocational or entrepreneurial activities, (4) enrichment curriculum concentrating on interest-related and typically supplements the academic curriculum, and (5) care curriculum emphasizing self-help and life skills development. They proposed the curriculum to promote participation of students with disabilities in the general K-12 education or the technical education and skills development courses once they finish the 20 transition program (Pawilen et al., 2018). Few years later, the official K to 12 Transition Curriculum Framework for Learners with Disabilities was rolled out and finalized with seven curriculum packages namely “care skills, life skills, functional academics, pre- vocational, enrichment, livelihood, and career skills” (Department of Education, 2020, p. 7-8) and teachers are found competent in all learning areas except in academic, enrichment, and pre-vocational curriculum where they are rated moderately competent (De Arao & Fontanilla, 2024). Community and Employment Facilitators Employment Services. Outside school, some eligible individuals with IDD in the US access job-related services provided by VR personnel. These services include job search, job placement, on-the-job support, or a mix of any two or all three services. Based on Nord and Hepperlen’s study (2016), any of these services, when accessed by individuals with IDD, provides an advantage to gaining employment compared to those who did not access any at all, but the chances get four times higher when they receive both job search and placement services, and 16 times higher when they also receive on- the-job support. However, it is important to note that just accessing on-the-job support will not guarantee maintenance of employment considering that job searching and placement considers an individual’s skills and interests when job matching. Similarly, access to a quality job coach and natural support would provide positive experience in the workplace to address any queries or get guidance during employment (Schutz et al., 2023). 21 In the Philippines, some private sectors also craft transition programs out of community needs in the absence of school or public services. For example, in Paguio’s research presented at the proceedings of the International Conference on Special Education (2021), rehabilitation practitioners developed their own transition enrichment program and modules that increased the stakeholders’ appreciation for transition education, allowed for a commission income through the transition activities, and heightened parents’ optimism and vision. Moreover, they had various professionals collaborating and implementing the transition plan designed according to the students’ goals, needs, and skills leading to employment placement. Informal Support. Aside from the discussed activities, informal or natural support such as family and social networks were also found crucial to facilitate employment. Sanderson and colleagues (2024) found this was especially true in Black families who typically provide the most extensive informal support. There is limited study in the US on what role social capital plays in facilitating employment among individuals with IDD. However, in a study in Canada by Petner- Arrey and colleagues (2016), individuals with IDD and their caregivers, who were individuals’ parents or friends, were interviewed and found that paid work and even volunteer opportunities arrive through the connections of their parents or their acquaintances, and occasionally through the social networks of persons with IDD. Moreover, parents and job coaches also support in sustaining their jobs through teaching the job tasks at work, explaining unwritten rules, and the behavioral expectations at work. Another aspect of social capital that these researchers found was that parents advocate for 22 employment opportunities because they know their children’s skills the best, so they also connect with agencies who do job matching or negotiate alternatives to competitive employment when those competitive roles is not realistic for the individual’s skills or do not fit with other conflicting priorities (e.g., health and wellness or recreational activities). Similarly, in a scoping review in the US by Kramer and colleagues (2018), families who serve as role models or mentors facilitate employment outcomes because they possess knowledge and skills in dealing with the transition process and communicating consistently with at least one compassionate professional. Scott and colleagues (2021) reported this is particularly the case for Black students with IDD due to their family’s connection or social/cultural capital and active involvement playing a significant role in co-advocating the students’ needs and preferences that promote self- determination needed from transition planning and beyond. In general, research has found that families’ networks, active involvement in negotiation for employment, and their mentorship and advocacy for their child have facilitated accessing employment (Petner-Arrey et al., 2016; Kramer et al., 2018; Scott et al., 2021). Workplace Support. Natural support, like colleagues and supervisors, was found beneficial to increase not only the social and vocational skills of employees with IDD but also their quality of life due to increase of salary, working hours, and employment duration (Athamanah et al., 2024). According to Corbière and colleagues (2014), individuals who provide natural support in the form of recognition and willingness to 23 share job tasks increase the length of employment. Other workplace accommodations include support from peers, families, mentors, supervisors, or colleagues, employment visits from a job coach, provision of training and relevant work resources, flexible work schedule, and an inclusive working environment. Other factors that may determine disability hiring are the employers’ positive impression of added business value (i.e., company reputation, incentives, improved workplace attitudes between employees with and without disabilities), previous disability hiring experience, and beliefs that it can impact the employees’ lives. Employees’ prior work experience is also preferred (Gatchalian et al., 2014). Barriers to Employment Outcomes The barriers discussed in this paper revolved around issues encountered within and outside the school systems, including diverse perspectives of the relevant transition individuals and employment stakeholders. School Barriers Transition Planning. A particularly important component to provide the necessary transition services is through transition planning; however, teachers still hold the most dominant role during this process and students with IDD and their families have limited or no opportunities to participate or lead at all (Best & Burke, 2024). Moreover, in this process, students’ self-determination skills should come into play to promote post- school employment outcomes aligned with their needs and desires. However, in a study by Scott and colleagues (2021), researchers interviewed parents of Black students with IDD and found several factors, rooted in ableist and racist systems, that hinder the 24 promotion of this self-determination such as school’s lack of support, late transition planning, separation of students with general peers, teachers’ untimely sharing of information or lack of transition planning resources, teachers’ low expectations to their child, minimal provision of work and extracurricular experiences aligned with interests, and limited acknowledgement of their inputs during IEP meetings or in deciding courses and schedule leading to mismatched goals. As mentioned earlier, issues in race predominantly hinder successful employment outcomes (Flexer et al., 2011; Simonsen & Neubert, 2013). Additionally, although schools provide opportunities for career exploration, parents of youth with IDD expressed limitations on availability of program options and accessible work options and unmet need for more guidance, communication, and resources. These limitations lead to feelings of being confused and burdened by the responsibility for expected student progress and success while handling self-doubt pertaining to decision-making in the transition process (Benson et al., 2021). To sum, common transition planning barriers include lack of communication, guidance, and transition resources, and limited program options or work experiences aligned with student needs (Scott et al., 2021; Benson et al., 2021), which is also similar to the issues of transition in the Philippines where there is limited resources and misplacement to programs not aligned with the students’ abilities and needs; hence, teachers do the program modification for meaningful transition instruction (Villareal et al., 2022). 25 Philippine Transition Practices. In one transition program in the Philippines, Paguio (2021) identified stakeholders’ disregard for the value of transition education because they mistakenly expect students with disabilities to remain in school indefinitely. This belief still persists as many report lack of awareness of the need for transition support as well as the types of services and professionals to seek or engage (Cabatan, 2004). In another Filipino public school that investigated its transition program for students with disabilities, researchers found that vocational skills are rarely taught due to perceived safety issues, lack of appropriate school facilities, and limited resources. Hence, teachers focus more on teaching “functional academic skills, community relationship skills, daily living and health skills, and personal hygiene” to increase students’ independence and practical skills (Capinpin & Rabara, 2023, p. 286). Filipino teachers in general have shared the limited programs and services for students with disabilities, insufficient knowledge about the transition curriculum, lack of learning materials and equipment, unequipped teachers, fund constraints, and absence of partner agency for job placement leading to gaps in skills and low self-confidence among students with disabilities (De Arao & Fontanilla, 2024). Collaboration and Staff Issues. In school, interagency collaboration remains a challenge to further support post-school outcomes. Such instances include varying understanding of roles in provision of services and frequency of communication between school-based and CIL professionals (Plotner et al., 2024), minimal or ineffective coordination between teachers and VR professionals in delivery of pre-ETS due to time 26 and fund constraints, opposing information, lack of space to collaborate, absence of relevant community providers and agencies (Carter et al., 2021), collaboration issues among businesses, agencies, and vocational rehabilitation agencies (Petcu et al., 2015), challenging efforts to engage caregivers especially for those in rural areas (Awsumb et al., 2020), and minimal involvement or negative attitudes of families or parents towards their children’s education (De Arao & Fontanilla, 2024). For Filipino families, there is also a lack of planning and coordination with professionals as there is absence of employment specialists; hence, parents do most of the initiatives in reaching out to service providers (Cabatan, 2004). There are also low expectations of agency staff and teachers (e.g., thinking that the students’ goals are not realistic), inefficient pre-ETS training and capacity (Carter et al., 2021), teacher’s lack of interest and skills to facilitate transition activities (Paguio, 2021), shortage of trained professionals (e.g., apprenticeship program coordinator), and limited human and financial resources, especially in facilitating support for job placements (Schall et al., 2024; Petcu et al., 2015). Skills Training Issues and Lack of Opportunities. There is a lack of employment or paid job opportunities across both urban and rural areas, inaccessible transportation to and from work, and inadequate employment preparation for students’ workforce participation as they have some varying levels of skills, motivation, attendance, responsibility, problem behavior, and socialization (Awsumb et al., 2020; Petcu et al., 2015, Carter et al., 2021). These challenges also highly reflect the same issues in the Philippines where Filipino teachers observed the same student challenges 27 during training like difficulty in workplace adjustment, socialization, comprehension of instruction, and some negative attitudes (Bullecer & Dalonos, 2022). Overall, the employment barriers found at the school level include limitations in community placement or opportunities for students, lack of knowledge on resources or programs, collaboration or communication issues, low expectations, shortage of staff or resources, and limited service capacities of professionals and work skills for students (Carter et al., 2021; Awsumb et al., 2020; Carter et al., 2024; Petcu et al., 2015; Schall et al., 2024; Bullecer & Dalonos, 2022; De Arao and Fontanilla, 2024). Family and Community Barriers Family Concerns. At the family level, parent expectations tend to be too ideal or too low (Awsumb et al., 2020). There is also the consistent high demand of support as well as caregivers’ frustration which then hinders continuous support for their children’s employment over time (Petner-Arrey et al., 2016). Moreover, there is also a cultural factor that affects employment goals where some families focus more on meeting daily needs than facilitating employment for a family member with IDD (Timmons et al., 2004). Some families experience difficulty dealing with disability service systems due to language barriers (Zhang & Benz, 2006) or the lack of practical guidance in navigating the employment service system (Schwartzman et al., 2025). Filipino families also face inadequate funds, tight schedules and different priorities, and unfamiliarity with the transition curriculum (Cabatan, 2004; De Arao & Fontanilla, 2024). In addition, some parents experience fear, lack of support, future ambiguity, and doubt about their children’s capacities for employment success (Blustein et al., 2016; Chen et al., 2019). 28 This is the same concern of Filipino parents who deal with issues on their child’s placement when they are no longer present as transition programs typically lack employer networks who may be potential employers (Paguio, 2021). Whether to allow their child to live independently or do post-school opportunities is also influenced by Filipino culture and decision-making (Cabatan, 2004). Despite individuals with IDD receiving substantial natural support in employment, they receive the least extensive support; hence, quality support is still needed to increase employment participation (Sanderson et al., 2024). This may also be similar to some families experiencing several support services in school but those later reduce to few to none after exiting school (Benson et al., 2021). Policy Issues. At the systems level, there is a need to simplify the eligibility process at the state vocational rehabilitation agency level and lessen the amount of waiting time to receive employment services, so they can serve more youth at the transition level (Sundar et al., 2018). Families are having difficulty accessing jobs when a government agency’s process is too long (Petner-Arrey et al., 2016), which is a result of the state’s limited budget (Kramer et al., 2020). Even when they receive those, some parents and individuals with IDD report challenges such as outdated models of current employment programs and services that are restricting and overlooking career aspirations or interests, needs, and educational path and insufficient capacities of employment specialists (Kramer et al., 2020). Interestingly, there are also issues on Supplemental Social Security benefits (Carter et al., 2021; Petcu et al., 2015), wherein those who are under the Social Security 29 Disability Insurance (DI) or the Social Security Income (SSI) programs do not utilize the said employment services (e.g., job searching, training, or other work programs) and brings low employment rate due to a risk of losing some benefits when their income raises. Even for those who work, they still participate in other safety-net programs implying that their employment income still does not suffice (Houtenville & Brucker, 2013). In the Philippines, adolescent and adult services or programs (eg. job training and placement, accessible transportation, and group homes) are scarcely available; hence, access to vocational counselors or job coaches is also rare (Cabatan, 2004). Workplace Barriers. Disability-inclusive employers in public or private sectors are still limited (Paguio, 2021), and their disability awareness is still lacking (Carter et al., 2021). This may lead to hiring discrimination that hinders acceptance and opportunities for individuals with disabilities (De Arao & Fontanilla, 2024). Other challenges in the workplace include receiving no health insurance and lower wages compared to colleagues in the same position, lack of workplace accommodations, and even if they receive accommodations, colleagues and managers are non-supportive thinking that it is a special treatment or it is unfair. Whether disclosing disability or not is also a challenge for some trying to land a job or receive appropriate workplace accommodations (Jans et al., 2012). Additionally, in a study by Sundar and colleagues (2018), previous employees with disabilities mainly think that their disability is a challenge in looking for jobs. On the other hand, job seekers with disabilities think that a lack of education or training and stigma about their capacities hinder their ability to obtain employment. Stigma was the 30 topic of a study by Alson and colleagues (2019) who explored Filipino employer perspectives in private and public sectors about the factors influencing disability hiring and employment. The researchers found that employers usually prefer younger male employees who have a college degree, though having high school and vocational training is considered. Generally, according to De la Cruz & Sampana (2020), Filipino employers hesitate to hire due to perceived incompetence or low productivity of individuals with disabilities; their inability to accommodate disability needs and assumed additional cost; absence of disability-inclusive rules and regulations; and if hired, workplace culture is not disability-friendly. Moreover, people with severe cognitive disabilities report a lack of enthusiasm to work (Schutz et al., 2023). Some other workplace concerns encountered by individuals with developmental disabilities in the Philippines include irregular attendance, difficulty learning new job skills and navigating home and other community settings implying inadequate readiness and unfamiliarity in post-school settings (Cabatan, 2004). Transition and Employment Experiences of Individuals with IDD Generally, there are relatively few studies in the U.S. that have deeply and directly engaged specifically the employed individuals with IDD beginning their transition experiences to post-school employment which this paper will delve into; however, a closely related study by Lindstrom and colleagues (2014) explored their insights, including parents, employers, and school and service staff, regarding the early employment experiences as well as the support and barriers for career advancement among employed individuals with IDD. Consistent with other studies, family’s 31 expectations and their example and community work experiences that increase work capacities and career preference promote job acquisition, but career placement facilitated by agency job developers do not typically match their interests due to limited job opportunities. Moreover, employers who are in partnership with schools also promote work opportunities and accommodations (e.g., flexible and positive work environment, training and monitoring, prompting on work structure, customizing job roles). Regarding financial management, the same researchers found that individuals with IDD are supported by their families in handling bank accounts and assisted by independent living advocates in monthly budgets, but because of the income requirements attached to the disability benefits they access, they also experience limited wage progression. Furthermore, they report not advancing their job roles because of limited “technical, academic, or communication skills” (p. 46). Overall, they feel valued and enjoy working (Lindstrom et al., 2014). Another related study in Norway by Sigstad and Garrels (2022) explored the perspectives of mostly part-time employed young adults with mild ID engaged in competitive work on what personal traits and environmental factors support their employment goal. Participants exhibited self-determination (e.g., self-confidence regarding capacities and limitations, work competence and openness to feedback, ability to articulate preferences, set career goals, and do problem-solving, and capacity to stand up for oneself or have self-advocacy) and soft skills (e.g., being punctual, persevering, trustworthy, and having interpersonal skills and high work morale) to facilitate employment. Interestingly, participants did not extensively identify school activities that 32 are helpful for their current employment. Meanwhile, the environmental factors that facilitated their employment include support from parents/family who helped in navigating service systems and job preparation, assistance from broader networks like teachers and job coaches during job searching and working, collaboration between school and workplace that connected them to job opportunity, an inclusive workplace with friendly colleagues and manager, and workplace accommodations such as established task lists and routines, training, and flexibility in response to their shifting work energy. Not only that, a study by Schwartzman and colleagues (2025) explored the perspectives of caregivers of working-age individuals with IDD on facilitating factors to access paid employment. In their view, facilitating factors include the employee mindset of individuals with IDD; positive expectations, involvement, and support from family, workplace, and service systems; community awareness on disability hiring; skills in self- advocacy, communication, self-regulation, socialization, and traveling; community-based transition program that connects them to employers and service providers; access to employment services and benefits counseling; parent networks; direct application to employers; and suitable job with workplace supports like coaching, training, accommodations, natural supports, and promotion opportunities. Extending this study to capture insights of individuals with IDD themselves would be essential as well as the types of school or community experiences that they found particularly responsive to their needs. 33 School Experiences In a study by Clavenna-Deane & Coates (2022), students with disabilities who just recently exited high school were asked which school experiences were found helpful to achieve their post-school goals including but not limited to employment. Among the factors they highlighted were having supportive family, friends, and school staff who also boost their essential success attributes (eg. goal-setting, decision-making, self-confidence, discipline), attending CTE classes and career-focused electives, interest-related classes (eg. music groups or college courses), and extracurricular activities (eg. sports, student organizations, community-based activities), finishing high school, and teacher-led transition planning; although, it is important that some also did not have positive experiences or relevant support during high school. To specifically explore insights including individuals with IDD, a delphi study by Schall and colleagues (2024) considered the perspectives not just of adults with IDD but also tried to reach consensus with parents or caregivers, high school educators, employment service providers, and researchers whether the five evidence-based pathways including supported employment, customized employment (CE), internships, apprenticeships, and post-secondary education are socially valid or useful interventions for post-school employment. Results indicated that all except apprenticeships are socially valid pathways that lead to meaningful employment. This finding corresponds to other studies that both supported employment, or being in an integrated work set-up while receiving on-going support, and CE, or customizing job roles while gaining on-the-job 34 support, facilitate employment participation (Wehman et al., 2014; Inge et al., 2024). Moreover, internship programs that provide full working experience matched with consistent and collaborative support were also found beneficial (Avellone et al., 2023). Job-Seeking Experiences In a national survey conducted by Sundar and colleagues (2018), the researchers explored the job searching and employment experiences of individuals with different types of disabilities in America. The participants shared that the most common job preparation for them is by receiving health or rehabilitation support to improve functional abilities, followed by getting assistance from family and friends, going to school (eg. certifications and experiential training), and requesting resume-writing support among others. They also persistently looked for jobs online, through family or friends, or by directly contacting employers. Also, despite common barriers like non-engagement with vocational rehabilitation, lack of transportation or training, employer stigma, or discouragement from friends and family, they were able to effectively address those, making them highly satisfied in their current jobs. In a qualitative study, Jans and colleagues (2012) conducted in-depth interviews with employed individuals with apparent and non-apparent disabilities on whether to disclose disability or not at the beginning of the hiring process. Although preparing a narrative about their work skills is common, disclosure of disability is somewhat less common. Disclosure is a personal choice done in a plain and direct manner; some individuals who disclose their disability are able to earn work promotions, but disclosing their disability may also pose a risk if they disclose too early or their employer views 35 their disability as a hindrance to quality work. Having someone related to the employer to vouch for them, knowing how to pitch for oneself and prepare well prior to the interview, applying for disability-related jobs or government positions, and seeking more education were also found helpful strategies to succeed in job-seeking. Workplace Experience At the workplace, a study by Sinclair and colleagues (2024) identified the attributes of self-determination that support employment, and they found out that employed individuals with IDD shared their intrinsic motivation in their work where they feel valued, purposeful, joyful, and passionate. They also have aligned personality traits and skills with their work and that they’re supported by their colleagues, and recognized due to their unique disability perspective. They also exhibited decision-making skills whether for financial or career choices, goal-setting in terms of career plans, problem- solving to meet job demands or address issues with colleagues, self-advocacy for themselves and for others, self-management (emotionally, professionally, financially, and in daily living), and self-awareness of skills and needs. Some other attributes that they shared when providing advice to job-seekers is being persistent during job-search and being proactive to pursue working. On the other hand, participants also shared their challenges in socio-emotional and behavioral aspects, mismatch or skill gaps with jobs, difficulty in learning or remembering, some encountered physical barriers, and employers’ negative perception or stigma. In exploring what employment means among employees with IDD, Gilson and colleagues (2022) found in their study that individuals with IDD see work as a means to 36 connect socially - having a place of belonging, workplace support (e.g., receiving feedback, work assistance, and training), and expansion of social networks leading to career opportunities or advancement and sustaining relationships. On the other hand, they also encountered issues with colleagues like personality differences and discrimination (e.g,. being “tokenized” or called names) and challenges with building networks (e.g., distant location and lack of opportunities and role models). Moreover, the same researchers found that work is also a means of self-determination where individuals with IDD feel a “sense of purpose”: a motivation to work, learn new things, persist and show up in job roles aligned with their skills, support colleagues and serve clients, and act autonomously. In contrast, instances that hinder their motivation to work include limiting their autonomy (eg. low-preference jobs and reduced responsibilities), competence (eg. unsupportive supervisors or limited work accommodations), and persistence (eg. desire to change job roles). Lastly, individuals with IDD specified work as a means to gain power and survival wherein they attain independent living and financial capacity to support daily expenses and recreational activities as well as support their family; however, being denied job opportunities and unequipped for a specific occupation hinders their ability to be independent. Jobs also provide opportunities to be recognized for their capacities and increase their aspirations for job roles, but stigma in disability hiring and unfair workplace treatment impedes this goal (Gilson et al., 2022). Looking into Imbong and Pielago’s study (2021), Filipino government employees with physical disabilities felt inadequacy or mismatch of their skills to the job, experienced competitive hiring and discrimination, mobility and transportation issues, 37 inflexible working hours, inaccessible computers and buildings, financial challenges, gaps in support mechanisms, political concerns in the workplace, and lack of quality implementation and compliance of the mandates supporting them. They see overcoming these barriers through the government’s provision of assistive devices, skills training, benefits, and availability of jobs. Further policy formulation and a council made up of individuals with disabilities, employers, non-government organizations, and the local government were recommended. Similar to public school employees with disabilities, Avila and colleagues (2023) found that participants also felt low self-confidence, high hiring demands, negative stereotypes, and inaccessible school facilities. Other challenges include pressure to prove their skills and the lack of disability awareness in school, so there is a need for more compassion and collaboration, despite their professionalism. Some participants shared contentment and empowerment when accomplishing duties. Quality of Life In assessing the quality of life of employed individuals with IDD in either CIE or work-center employment or typically those with lower minimum wage, their objective and subjective views were explored by Randall and colleagues (2023). Objective quality of life means the measurable outcomes of “material well-being, health, productivity, intimacy, safety, place in community, and emotional wellbeing” (p. 273-274) such as amount of wage, number of work hours, and regularity in community participation. Meanwhile, subjective well-being is the level of happiness and satisfaction. Through surveys and interviews, they found that those in CIE had higher objective quality of life than those in work-center employment. Nonetheless, everyone reported high subjective 38 well-being, but employees with CIE specifically have lower satisfaction in their community participation (e.g., socialization opportunities) despite higher measurable outcomes like salary. Chapter Summary Several research studies in the US have identified certain programs, approaches, collaboration and skills as critical to support post-school employment success to individuals with IDD, but the Philippine transition is still understudied on those aspects. Having these in mind, there is still a growing number of unemployed individuals with IDD. Given the several facilitators, barriers, and perspectives explored from multiple stakeholders and a variety of studies reviewed in this paper, there is a lack of in-depth exploration on the views of employed individuals with IDD both in the US and Philippines on how they experienced support in terms of employment preparation, job- seeking, and employment outcomes. Considering both programmatic and societal factors within and outside school that can affect their transition pathway or experience (e.g., complexity of transition process, employers’ stigma, inaccessible institutions, and limited opportunities or competitive labor market), this study will attempt to holistically and qualitatively capture their transition support experiences from student to job-seeker, and now as an employee to ascertain how those patterns of activities led to outcomes in their current life. Specifically, this study will also elaborate on the roles of relevant stakeholders to facilitate and retain employment (Lindstrom et al., 2014) and to hopefully lead to the development of strategies for contextualization based on available resources and funding, or to some mandates or policies within a local or national level. 39 Chapter 3: Methodology Purpose of the Study and Research Questions The purpose of the study is to explore the relevant transition support experiences of persons with IDD both in the US and Philippines that prepare them to achieve post- school employment success. Particularly, I explored first-person narratives of currently employed individuals with IDD describing what activities or resources are meaningfully helpful to them in their educational journey that led them to gain jobs, how job-seeking experience looked like after school, and what helps them to sustain their current employment. This study explored the phenomenon of transition from school-to-work among individuals with IDD where we aimed to directly hear how activities, resources, and support system were realistically experienced or manifested in the lives of individuals with IDD in both contexts; hence, the central research question followed by subquestions: What does support from education to employment look like based on the experiences of employed individuals with intellectual and developmental disabilities? 1. What preparation activities effectively supported the post-school employment success of persons with intellectual and developmental disabilities? 2. How were individuals' strengths, needs, and culture addressed during preparation and employment activities? Research Design and Rationale To understand the unique experiences of the participants in different contexts and to meet the study’s objectives, I used the qualitative phenomenological approach where I investigated what support means to them in their experience of transitioning from school 40 to work and fully extracted the essence of that phenomenon (Creswell & Poth, 2023; Moustakas, 1994). To such a pressing issue of unemployment among individuals with IDD, their experiences would reflect programmatic and social factors directly experienced by the participants regardless of the objective aim of present transition programs, adult services, or support activities in their movement from learning institutions to employment settings. Using semi-structured interviews in phenomenology, this approach highlights the belief that their voices or direct experiences are critical to inform research, policies, and practice, and that no specific practice fits all nor every transition activity works for all due to presence or lack of resources in each context; hence, a need to explore diverse experiences under the same phenomenon of transitioning from school-to-work. Philosophical Assumptions Having a philosophical assumption directs how researchers wrote research problems and questions (Huff, 2009). This study holds ontological and axiological assumptions that aim to report multiple lived experiences, realities, and values both in developed and developing countries experiencing the same phenomenon of transitioning from school to work. These philosophical assumptions are weaved into the interpretive frameworks of social constructivism, pragmatism, and critical disability theory where it asserts the belief that every individual with IDD holds unique capacities and not a defect, and that the participants’ lived experiences or subjective views on how they understood support and transition in their contexts are useful information to address inequities, such 41 as ableism and racism, in their inclusion from education to employment settings (Creswell & Poth, 2023). Ethical Considerations The study underwent Institutional Review Board’s (IRB) process and approval. After permission to conduct the study was obtained, eligible participants (see next section) were invited for a consent meeting through Zoom and were given the consent forms for advance reading. The informed consent process involved the faculty PI explaining the study's purpose, emphasizing the voluntary nature of participation, asking questions to confirm potential participant’s understanding of the study activities and voluntary nature of participation, and informing participants of their right to ask questions before joining or withdrawing at any time. Some interested participants who lacked the capacity to consent have a legally authorized representative or legal guardian present during consent meetings and research interviews. Participants from the Philippines who spoke and understood both English and Tagalog were engaged in the language they found most comfortable during the conversations since I am fluent in both languages. All participants signed and received the necessary consent and assent forms, including the international consent form designated for Filipino participants. Prior to the interview, I built rapport with the participants by introducing myself first and sharing the reason behind the research. I created a relaxed interview environment, resembling a casual conversation where we simply shared stories with each other. In the context of the interview questions that focused on the participant’s 42 experiences and support from educational to employment journey, some participants also expressed job-seeking struggles or other barriers they experienced. Participants were encouraged to pause or not answer questions if they felt discomfort. All data gathered were then uploaded securely on the University of Minnesota’s Box Server for data management and analysis. Settings and Participants The study participants (see Table 1) were employed individuals with intellectual and developmental disabilities aged 18 years old and above in the Philippines (Metro Manila and Western Visayas) and the USA (MN, FL, AK, TX) who work either part-time or full-time for at least 6 months. Through purposeful sampling, I sent email and recruitment posters to organizations and government offices that have employees or provide direct employment services to individuals with IDD. Interested participants were screened to determine whether they met inclusion criteria prior to inviting them to a consent meeting and subsequent research interview. In total, there were 16 participants from both countries, where 9 were from the US and 7 were from the Philippines. In a phenomenological study, it is recommended having between 3 to 10 participants (Dukes, 1984) or between 5 to 25 participants (Creswell & Poth, 2018) to reach saturation. More than the sample size, this research design relied more on describing what the participants experienced (Creswell & Poth, 2023). Table 1. Participant Demographics Category Subcategory PH(7) US(9) n(16) % Gender Male 5 2 7 44% Female 2 7 9 56% 43 Age Range Between 23-30 years old 4 6 10 63% Between 31-45 years old 3 3 6 37% Race American Indian or Alaska Native 0 1 1 6% Asian or Asian American 7 2 9 56% Black or African American 0 3 3 19% White or European 0 2 2 13% Multiracial 0 1 1 6% Disability Type Autism 3 3 6 37% Cerebral Palsy 1 1 2 13% Down Syndrome 1 0 1 6% Intellectual Disability 0 3 3 19% Multiple Disabilities 2 2 4 25% Highest Educational Attainment Special Education 2 0 2 13% Some High School 1 0 1 6% Highschool Graduate 1 2 3 19% Some College 0 1 1 6% College Graduate 2 6 8 50% Master's Level 1 0 1 6% Type of Employment Full-time 5 3 8 50% Part-time 2 6 8 50% Annual Salary Range (US Participants) $25,000 and below n/a 4 4 25% $25,001–$49,999 n/a 0 0 0% $50,000 and above n/a 4 4 25% Not Sure n/a 1 1 6% Monthly Salary Range (PH Participants) ₱5,000 (~$85) and below 4 n/a 4 25% ₱5,001 – 20,000 (~$345) 2 n/a 2 13% ₱20,001 – 80,000 (~$1400) 1 n/a 1 6% Length of Employment between 6 months to 1 year 1 1 2 13% between 1 year to 2 years 5 3 8 50% more than 2 years 1 5 6 37% Work Location Urban 6 3 9 56% Sub-urban/Peri-urban 1 4 5 31% Rural 0 2 2 13% Job Sector Sales & Marketing 2 2 4 25% Retail 1 0 1 6% 44 Manufacturing 1 0 1 6% Real Estate & Property 1 0 1 6% Non-profit & Disability Services 1 3 4 25% Computer/Information Technology 1 3 4 25% Agriculture & Horticulture 0 1 1 6% Note: Demographic information that received no responses was not included in the table. Some participants with multi-sector roles were categorized by their primary function. | Abbreviations: PH = Philippines, US = United States, ₱ = Philippine Peso, $ = US Dollar Data Collection Tools and Procedure Following the informed consent process, the participants who expressed voluntary participation were sent calendar invitations and interview questionnaires at least 2 days in advance so participants could reflect on their experiences before they attend the interview, and to also ensure that we can have a fruitful in-person or Zoom interview conversations within 45-90 minutes. The interview began with the collection of their demographic information followed by the one-on-one interview with questions structured according to Framework for Research in Transition by Trainor and colleagues (2020). The interview questions were provided categorically from asking their support system from school to work, their employment preparation activities, job-seeking journey, and employment support (see Table 2). All interviews were completed and data collected during the period of October to December 2024. The semi-structured interview approach was selected to elaborate on the participants’ answers to the open-ended questions and to provide further clarification during the conversation (Given, 2008). With each participant, I requested consent to record and used the automatic transcription feature of Zoom. Then, I introduced myself, shared my semi-insider perspective that led me to the research topic, and talked about the purpose of the study. I also emphasized that they have the freedom to request for a pause 45 or skip some questions, and that we could have a casual dialogue more than a formal interview. I also wrote in my research journal some interview notes to capture my reflections and share my transparency immediately with the participants if there are assumptions or potential biases from my interpretations based on what I get during the conversation (Ortlipp, 2008). In appreciation of their significant contribution and the time they generously provided, the US participants received $50 worth of gift card disbursed to them post-interview. Participants in the Philippines received a one-time amount of ₱1200 (between $20-$22) post-interview through online payment transfer. The latter amount, although less than the U.S. participants’ remuneration, was determined to be appropriate given the economic differences between the US and the Philippines and so the remuneration for participants in either country would not be disproportionate. Table 2. Interview Protocol Excerpt Transition Aspects from School Years to Adulthood (Trainor et al., 2020, p.7) Interview Questions Culture (Family, Groups, Community, Social Capital) How would you describe your support system beginning in high school until you got a job? Services and Supports in: a) Secondary (Special Education/General Education), b) Post-secondary, and c) Adult life (Disability Specific, Generally Available) ● Assessment, Planning, Instruction, Supports, Activities, Relationships Tell me about the essential activities you had in school that supported your goal to get a job. Tell me about the relevant activities or resources you sought or received as you looked for a job and until you get it. Levers (Funding, Laws, Policies, Resources) How has the community been helpful to you as a job-seeker with a disability or with gender or other cultural identities? 46 Thinking back to your first job or your current experience, what do you think helps you to maintain your job? Quality of Life (Experiences and Outcomes) Reflecting on your employment goals from when you started to now, are there any changes or continuities? In your role as an employee, how satisfied do you feel with your life right now? Note: See Appendix B for full interview protocol. Data Analysis After interviewing each participant individually, with some having legally authorized representatives present, the demographic information was organized through an anonymization log to de-identify participant details and indicate participant code. The audio and video recordings from Zoom and the raw transcripts of the interview were also immediately uploaded on the university’s secured Box server. Tagalog transcripts generated from Zoom were corrected, de-identified, and translated to English using the Microsoft CoPilot AI tool which is designed to be secure. All other transcripts were also cleaned, de-identified, and re-read multiple times (Agar, 1980; Emerson et al., 2011) before and during the organization and analysis of the data using NVivo, a computer software program for qualitative data analysis. Within NVivo, I also attached annotations or memos which are ideas that come up as I read through the transcripts and interview notes (Creswell & Poth, 2023). I also used a research journal to document reflexivity, or my self-reflection process (Lincoln & Guba, 1982). After the raw transcriptions were polished, they were coded, categorized, and analyzed into themes to answer the research questions. Using both NVivo software and interview notes in my research journal, I employed coding line-by-line as in open coding, horizontalization of data where significant statements are grouped and linked based on 47 “what happened” and “how the phenomenon was experienced,” and coming up with the themes or the essence of the experience (Creswell & Poth, 2023, p.242). The data were inductively analyzed which is a bottom-up approach to elicit participants’ authentic responses before coming up with the themes. With the belief that qualitative data analysis is a non-linear process, I also worked deductively, frequently checking the connection of each theme against the data (Creswell & Poth, 2023); hence, the adding, renaming, and re-organizing of codes and categories until I devised the themes and subthemes (see Table 3) including the interpretive model on what support from education to employment looks like (see Figure 1). Data Validity Creswell & Poth (2023) suggested using at least two validation strategies to document a qualitative study’s accuracy. In this investigation, I used several approaches, including triangulation among the audio and video recordings, interview notes, and the transcript. In addition, I engaged with epoché or bracketing using my research journal and memos which essentially separates my prior experiences, personal beliefs, and biases as a special education transition teacher so the participants’ experiences are well- highlighted (Moustakas, 1994). Moreover, I wrote rich and thick descriptions throughout the findings like including contextual descriptions and direct quotes from participants and detailing both the participants and the setting for transferability based on common characteristics (Erlandson, et al., 1993). I also solicited peer reviews of the codebook I generated to vet the logical process of coming up with the codes, themes, and interpretive model. Member checking was also done where the documented findings were shared 48 with participants for verification, with 11 out of 16 of them confirmed data accuracy based on their responses. Chapter Summary This chapter explains the aim of the study to understand what support from education to employment looks like based on the experiences of employed individuals with IDD. The research design and data collection procedures were explained including the analysis process. The results of this study are discussed in the next section. 49 Chapter 4: Findings This study sought to examine This study sought to examine the experiences from education to employment of employed Filipinos and Americans with IDD. Based on the analysis of the interview responses from sixteen participants, five themes emerged: (a) helpful employment preparation activities and resources, (b) doors to employment, (c) social capital as support system, (d) inclusion barriers, and (e) inclusive workforce placement and outcomes. These themes were expanded with subthemes (Table 2) organized using an interpretive model (see Figure 1). Table 3. Themes and Subthemes Overall, this study found that the theme of (a) meaningful employment preparation activities and resources that effectively supported post-school employment success included the subthemes of (1) a combination of their participation in generally Themes Subthemes (a) Helpful employment preparation activities and resources (1) Participation to school and community pre- employment activities (2) Access to civic institution services (b) Doors to employment (1) Individual’s employability skills (2) Direct job application or referrals (3) Workplace commitment to inclusive hiring (c) Social capital as support system (1) Core support (2) Inclusion allies (3) Mentorship support (4) Opportunity champions (d) Inclusion Barriers (1) Personal Challenges (2) Societal Barriers (e) Inclusive workforce experience and outcome (1) Employment retention support (2) Employment impact 50 available and disability-specific employment preparation activities within and outside school settings; and (2) access to civic institution services that provide personal and professional support from home, school, work, and community. The theme (b) doors to employment included their (1) employability skills such as aligned interests to the job, hard skills such as computer/technological skills and communication skills, and soft skills like resilience, self-advocacy, and self-determination; (2) the referrals or recommendations from their social network like peers, family, and professionals; and (3) the employers who reach out directly as part of their commitment to inclusive hiring among the disability community. In terms of how their strengths, needs, and culture were addressed during preparation and employment activities, their (c) social capital served as support system and was comprised of family, professionals, and peers who played crucial and active roles, such as (1) core support from home, school, and work; (2) inclusion allies to address accessibility needs and to provide acceptance and encouragement for emotional and professional clarity and direction; (3) mentorship support for any formal or informal training and support from school to employment; and (4) opportunity champions that provided referrals, recommendations, and discoveries of their potentials leading them to participate on advocacy groups, employment activities, and other opportunities. These support systems were ever-present as they navigated (d) personal and societal barriers as a student, job-seeker, and employee with IDD. As current employees, they highlighted the support they received to maintain their jobs under an (e) inclusive workforce placement that eventually led them to positive 51 outcomes through (1) employment retention support including provision of accommodations, an inclusive team, regular check-ins, timely recognition of their efforts, and professional training. These natural supports and their aligned personal attributes in work facilitated their employment retention that led to (2) employment impact such as personal and professional growth, monetary autonomy, advocacy, purpose, productivity, and increased meaningful connections. Figure 1. Interpretive Model on What Support from Education to Employment Looks Like | Red square figures indicate the themes. The black round figures indicate subthemes. Gray rounded-rectangle figures explain each subtheme further. Centering on the participants’ experience, the interpretive model shows the person with IDD who was supported by their social capital, or the people who served as their support system, from their schooling until they got employment. The inclusion barriers were also present throughout their transition and can come from the community or the people surrounding them. The participant’s employability skills were developed through the helpful employment preparation activities and resources that are a combination of general and disability-specific pre-employment activities in school and at the community leading to self-discovery, improvement, and job-readiness. Civic institution services also helped in providing professional and personal support. As a result of the participation in 52 employment preparation activities and involvement with social groups, participants were directed to inclusive workplace opportunities that are supportive of their job retention, leading to the employment’s personal and community impact. Each theme and subtheme is discussed in more detail below. Helpful Employment Preparation Activities and Resources The first theme represented the pre-employment support the participants received within and outside the school community that allowed them to gain employment. This included (1) participation in school and community pre-employment activities, and (2) access to civic institution services. The services that they accessed from community institutions and the job preparation activities (see Tables 4 and 5) they underwent during and after school were discussed as helpful to access work placement. This study essentially found that being exposed to various programs and job activities within and outside school, and receiving institutional resources that provided educational, professional, and social services were beneficial to facilitate post-school employment. Participation in school and community pre-employment activities This subtheme showed how the participants shared a combination of general and disability-specific school-to-work preparation activities that they described as helpful for them to get a job. These included programs, activities, and job experiences that fundamentally built their work experience and increased their understanding on what type of work they would like to take. Listed below are those activities and its relevance to the needs, strengths, and culture of the participants (Table 3). 53 Table 4. Employment Preparation Activities Programs/ Activities Participant’s Response Essence Career Counseling “I had a job coach that helped me figure out what I wanted… They gave me like a survey, as I remember, and it's to know what I like to do and what I want to do.” - US_03 “It was my school counselor that I normally went to get some word of wisdom.” - US_05 “I decided to join the family business because my mom proposed creating my own company.” - PH_04 “Career assessments [in highschool] helped me discover the area that I would be more successful in.” - US_09 Guided Planning Career Fairs & Seminars “When I was in college, I saw booths representing different companies that you might want to apply to.” - PH_04 “I also had a career-related seminar with my peer circle organization. They have been very useful for me in preparing for employment after college.” - PH_05 “People are coming to organize [conference] so it encourages the students to tell them what to do.” - US_06 “I attend [a] tech conference.” - US_08 Career Awareness College Readiness Program “In high school, there was this thing called the college preparation program…to prepare for the college entrance exams in colleges and universities.” - PH_04 “I took college classes in high school… it kind of prepared me and helped me get ahead.” - US_01 “You get college credit or advanced classes.” - US_02 Preparedness to College Extracurricular Activities ● school events ● student groups ● social or “I remember joining the global IT challenge.” - PH_01 “He got used to working with groups” - PH_01a** “It’s very important to me because [attending events] makes me feel included and more motivated to work hard and fulfill Build social skills, communication, and motivation 54 organization events my dreams.” - PH_05 “That is one of the best gifts to me; to be involved in that [disability organization] internationally so that I can help persons with disabilities in regions, not only in our town but in other international countries [too].” - PH_06 “I was in a debate group in which that helped me in public speaking. For the football club that I normally play in school, that alone also helped me to be outstanding. That also makes me know people [and] make friends.” - US_05 Learning Course “I took a leadership course for the very first time, and then really seeing I could go far with this, and learning how to advocate… not only for myself, but [also] for others.” - US_03 “I’m part of the Microsoft Learning Pathways program where I started to use LinkedIn and Microsoft Office so I can use it in the workplace.” - PH_04 Applicability to Work Resume-writing and Mock Job Interview “They host events [on] how to source for a job, how to prepare for a job, and at that point, I had to participate, and I feel that it ought to have been something that would have inspired me…like giving me the idea on how to get a job.” - US_07 “I think mock interviews are really helpful. So we would practice doing interviews [and] building our resumes in school. That was super helpful.” - US_01 Job-seeking Preparation Specialized Instruction & Rehabilitation* “At home there is therapy… The special school she attended - their activities also boosted her somehow... They are also brought out into the social community to adapt to what they see around them and be ready for what to do next.” - PH_02a** “I would say social skills training. It's a program where I learned about communication, professional behaviors, [and] non-verbal cues. I got to improve in those areas.” - US_09 Improved Social Adaptations 55 Transition & Post- Transition Program* “[In transition], they either teach you daily living skills like cooking, cleaning, [and] those types of stuff. It was [also] just getting used to the routine of working and being in one place from 6 [am] to 3 [pm].” - US_02 “He was categorized under computer, photography, [and] editing [in the Post- Transition program], so that’s where his skills were honed for that.” - PH_01a** “[In the post-transition program], they offered training for those above twenty-five years old…they are being trained to be ready for outside work.” - PH_02a** “They teach them, and they saw that she was willing to sew, so they gave her a portable [sewing] machine, that's where she started.” - PH_03a** Increased Functional and Work Skills Workplace Learning ● Volunteering ● Internships ● Student-led enterprise ● Actual Job Experience “An internship for me is like a training program that shows what we will do and what to expect in the future workplace.” - PH_04 “I became a professional freelance photographer several times. Those experiences helped me learn some of the skills I needed for future employment.” - PH_05 “Internships mainly [were] helpful just so I could figure out what I liked, what I didn't like.” - US_01 “I created the peer mentoring program at that day program where I helped with a lot of self-advocacy stuff, and really took partners in policy at that time to really educate myself, [and] to create the leader I am today.” - US_03 “It was fun. I got to interact with a bunch of different types of people, and it was very laid back.” - US_04 “We do bake [in high school] and this really helped me a lot because I did take it to where I was working.” - US_06 Skills Discovery, Fun Work Experience, and Work-readiness 56 “During my internship, I got to learn how to act in official settings, to be professional, and gaining some experience about my field.” - US_09 *Disability-specific activities; **Legal guardian’s response Note: "US/PH" followed by a number represents the participant, while the same code with the letter "a" denotes the legal guardian's response throughout the paper. As part of their job exploration phase, the participants mentioned several generally-available programs such as career counseling wherein some of them had career assessments or counseling with a job coach or school counselor, or informal career pathway discussions with a family member to figure out or decide on a career track with guidance. They also mentioned attending career fairs and seminars held in the school to explore and identify options for employment, and also to understand practical things done in a specific job. Aside from exploring different career options, some participants also mentioned that the college readiness programs in high school allowed them to prepare for and be ahead when they enrolled in college. This includes taking college credits in high school for US participants or reviewing materials for college entrance examinations in the Philippines. Many of the participants also shared about their extracurricular activities, which were social or interest-related and done beyond the four walls of the classroom. Such activities included participating in sports, debate, music, and retreats, and joining organizations offering leadership training, which boosted their socialization, communication, decision-making, sense of belonging, motivation, and confidence to thrive in various settings. Aside from these school-related activities, participants also accessed courses aligned with their employment interests and that were identified as 57 applicable to their work or something that indicated potential for growth and practical application in the workplace. Some examples included taking a leadership course, short learning course, or learning pathway program after secondary school. In terms of the disability-specific activities, some participants were provided special education and rehabilitation services like therapy and behavior interventions, which enhanced their social adaptation capacities. Transition and post-transition programs were also identified as increasing their daily functional and work skills, and their ability to get used to the routine of working. Going beyond the school setting, participants mentioned having job-seeking support in terms of writing resumes and doing mock job interviews that prepared them for completing job applications. The people who supported them in this process typically included job coaches, teachers, or a family member. They also had learning opportunities within workplace settings to increase their hard and soft skills and their knowledge in real job scenarios. This included doing internships, participating in student-led enterprises, volunteering, and having actual job experiences. These job and volunteering experiences were typically not supervised by the school but were personal engagements. Through these activities, participants mentioned that they were able to identify what was most or least interesting or fun to them, discover or learn new skills aligned with work, and get prepared for job settings. Access to Civic Institution Services This sub-theme portrayed the different community institutions or organizations, aside from the school, that played a role in providing some support throughout the 58 transition of participants from school to work which included the church, government, and disability agencies or organizations. The civic institution services were resources to address personal, educational, and professional needs such as financial, social, home, and employment support crucial for their exposure to opportunities and individuals who helped them identify and locate preferred jobs (see Table 5). Aside from these identified institutions, the general community was defined as helpful if it created an environment that provided acceptance, which consequently empowered them emotionally, socially, and professionally. “It’s the openness and acceptance of the whole community.” - PH_01a “If the environment is a good influence, it's a big help to them and it will greatly improve their personality.” - PH_02a “Her inspiration is that people appreciate what she does.” - PH_03a “Just how the community has been helpful, I'd say, it’s helping just knowing what jobs are available and getting them.” - US_01 Table 5. Civic Institution and its Support Services during Transition Community Institutions Resources or Services Participant’s Response Church Financial Support “My church was actually the ones that helped fund the testing that I went through in order to discover that I have this brain injury.” - US_04 “The priest also normally helped me with some food, and also for some peanut money.”- US_05 Government (1) Disability Rights and Policies Orientation (2) Post- secondary education or employment (1) The seminar [on policies, laws, and resources around disabilities] was organized by the government.” - US_06 (2) “They established a sheltered workshop where they work.” - PH_07a “They were very helpful in helping me get my college funding, so they were able to pay for [things] like books and tuition.” - US_04 59 support (3) Home, work, and community services (3) “The city realized the need to establish a rehab center. Initially, we paid for therapy at school through the parents’ efforts. Then after that, the city took over, so we didn’t have to pay anymore.” - PH_07 “Through the county, [my] waiver pays for transportation and assistive device, and anything that can help you. And then it is helping me pay a little bit of my rent, and they’re paying for certain equipment.” - US_02 “I started to deal with vocational rehabilitation.” - US_04 Disability Agencies or Organizations (1) Grants for personal or employment support (2) Job referral of participants with employers (3) Work- readiness training and orientation on rights (1) “So the capital we got, I bought materials for making mugs.” - PH_07 “We did apply for the grant called the disability inclusion grant…so that funding would be important for me to get paid.” - US_02 (2) “I’m forever grateful to the [disability] community for giving me my very first job experiences and showing me the importance of working as a person with autism.” - PH_05 “It's a job placement program for single moms who aren't able to get a well-paying job in order to support their children.” - US_04 (3) We attended [orientation on disability policies and rights]. About [health insurance], we didn’t know that [persons with disabilities] are under it. And then in bullying, you can't verbally do it…” - PH_03a “It was just their training on how to make your resume, [or] how to get employed…” - PH_01a Doors to Employment Having job preparation activities and community resources, participants then entered the “real world” or the workforce; hence, the term of this theme, “doors to employment,” which were technically part of their job-seeking experience where they carried their previous job experiences, attitudes and skills, and their methods to land on jobs. These doors to employment included (1) the individual’s employability skills, 60 (2) direct job application or referrals, and (3) workplace commitment to inclusive hiring. This study found that participants possessed certain traits and were aware of what job they wanted to pursue and did not become discouraged during job-seeking. Aside from that, they applied to jobs online or identified employers through recommendations and their involvement in organizations that referred them for employment. Individual's Employability Skills This sub-theme consisted of essential hard and soft skills related to the job that led the participants to employment (Table 6). The most common hard skills possessed by the participants were (1) computer/technology skills and (2) communication skills expressed through resume-writing and job interviews. The soft skills that emerged as part of their employability skills included (1) their resilience manifested through their consistency and optimism despite job-seeking rejections, and their self-confidence, characterized by belief in oneself and recognition of abilities despite a disability. Other soft skills found were: (2) self-advocacy, which refers to their awareness of their own capacities and limits, and being able to express needs and find accommodations to address those; and (3) self- determination, which refers to their ability to make choices, set goals, and produce efforts to attain their goals. Many of the participants also expressed that their work now is aligned with the interests and talents that led to their career choices. “I love to paint. I am an artist. Here at home, I draw and paint. Then at the sheltered workshop, what I do is paint.” - PH_02 “It was just basically the passion I had for drawing, and also painting was my biggest motivation to get a job as a graphics designer.” - US_07 61 “ICT is the future, and some stuff that motivated me to go into computer science was apps [and] robots.” - US_05 Table 6. Employability Skills Hard Skills Participant’s Response Computer/ Technology Skills “He’s in marketing and editing on the computer.” - PH_01a “The [employer] took notice of my computer technical skills.” - PH_06 “He didn’t have formal education in computers. We just sat him down with his own computer set, and then he was able to use the computer on his own.” - PH_07a “[My company] normally use computer, and my course of discipline is also computer science.” - US_05 “I was really into my career which is computer science like data analysis.” - US_06 “When I [was] in high school, I was also practicing drawing with a computer, and I had a lot of designs. I was good at it, and I enjoyed the whole thing.” - US_07 Communication Skills (Resume- writing and Interview Skills) “I’ll start with my resume-writing skills because before, I considered removing my autism diagnosis...” - PH_05 “I also feel that having a good communication skill because during the interview, I feel it’s one of the things that would really make you be successful because you would have to explain yourself. You would have to ask a question.” - US_07 Soft Skills Participant’s Response Resilience ● Consistency ● Optimism ● Self- confidence “I still keep on applying until I get a response from them.” - US_06 “Because if you didn’t get that job, it means it wasn’t for you. There will be a job that will seek your ability.” - PH_02 “I've never really felt like ‘If I don't get this job, then I'm not going to get the next job.’” - US_04 “Make sure that you believe in yourself. And it's okay to not be okay. And, everybody goes through different life situations and different life programs. Everybody's not the same. Everybody has different abilities, and you just have to learn to go with the flow of things.” - US_03 62 “I work on myself and not be limited by my disability.” - US_08 Self-advocacy “I advocate for myself by encouraging all persons with disabilities to enter the world of work…in order to earn income or money.” - PH_04 “It can’t just be me always adjusting because that’s unfair to me as a person with autism. They should also learn to adjust.” - PH_05 “Not to fight them, but to teach them. Because if you teach them, they would know how to treat you as a person with a disability.” - PH_06 “I'm very honest about what I need and what I'm good at and everyone else's, too.” - US_01 “Be open to the fact that it's their right to say no [when you ask for help], and if that's the case, then move on to someone who will help you… Just because I am an advocate does not mean that I won’t need help 24/7, so you just have to observe people; that you just can’t ask for anything. You kinda make your case.” - US_02 Self-determination “I am happy with my work. I am okay there. That will be my lifelong job.” - PH_02 “She wants to sew other items that she can also do. Not just making bags.” - PH_03a “To work in the family business is my goal.” - PH_04 “I believe that persons with intellectual and developmental diversities are capable of fulfilling their dreams, joining any type of industry, being independent, and having a family. As long as they work hard, pray to God, and surround themselves with the right people.” - PH_05 “I live here with a purpose, so that’s why I pursued my goals in my career.” - PH_06 “Find out what your strengths are, and then build on those. And then whatever your weaknesses are, or what you're not good at, figure out what those are, and then make sure you're keeping track of those.” - US_01 “Sometimes you just have to make your own resources. You research at the end.” - US_02 “I'm gonna do something that I'm passionate about and want to do.” - US_03 “There is a sense of fulfillment when you're doing what you really want to do.” - US_07 “It's knowing about the opportunity and knowing that the company was open to people with neurodiversity conditions.” - US_09 63 Direct Job Application or Referral This sub-theme mentioned the ways or methods participants were able to find out about or apply for various jobs. Participants mentioned finding jobs through online advertisements or social media applications such as Facebook, Twitter (now X), and LinkedIn, although they reported having difficulty due to several instances of rejection or lack of response for an indefinite time, “It was a bit challenging because I didn't get any [response].” - US_09. On the other hand, many instances of accessing employment happened through referrals or recommendations from family and friends. “She (friend) told you to bring your biodata or resume to the [employer], so that’s where he got accepted.” - PH_05a “I wasn't really getting jobs if I wasn't being interviewed at a place where I didn't already know someone… I've gotten to know the places I worked at because of a mix of friends and family, just all intermingled.” - US_01 “A lot of things that I did pretty much are the referrals I got, like, ‘Hey, we think you should apply for this’... So I really didn't have to put any work into it. I just listened and trusted [my peers].” - US_02 “My brother came across a job opening in a marketing firm.” - US_07 “I would say someone (a friend from a support group) told me about the opportunity, and then I applied, and from there it was on me.” - US_09 Workplace Commitment to Inclusive Hiring Another reason that participants got access to employment, aside from their particular skills and connections, was through employers or companies that embrace inclusive employment by directly reaching out and providing opportunities or space for them to secure jobs. 64 “They were looking for [individuals with] Down Syndrome, specified by a company. At that time, it happened that we weren't looking for a job, and then it was offered.” - PH_02 “[The disability service organization] found out about my situation and hired me to be part of the staff.” - PH_05 “Actually, they (the employers) were the ones looking for me, not me.” - PH_06 “I didn't actually go to them and ask for a job. They came to me and said, ‘Hey, we've got a really great team here, and you're part of our demographics that we wanna include.’” - US_04 Aside from the employers reaching out to the disability community, companies providing accommodations and being open to hiring people with diverse identities was also found to be helpful for gaining employment. “Looking for a job as an educator with a disability, I think that school districts were pretty accommodating, so that was good.” - US_01 “I think it's giving everyone equal chances of taking that position. So it really helps by being open to everyone, irrespective of your ethnicity, or your disability, or your any other identities that you really have.” - US_07 Social Capital as Support System Throughout their education to employment journey, the social capital that served the participants consisted of various support systems that were responsive to their needs, strengths, and culture throughout the transition phase. This study identified the roles of their social capital and the specific individuals or professionals mentioned as contributing to their post-school employment outcomes (Table 7). These roles were also subthemes, namely as participants’ (1) core support, (2) inclusion allies, (3) mentorship support, and (4) opportunity champions. 65 Table 7. Social Capital Roles Subtheme/ Roles Participant’s Response Identified Individuals/ Groups Core Support “I was very blessed with a good support system through my family who has always accepted me with my autism diagnosis. I’m very blessed because they were not in denial.” - PH_05 “They supported me financially, covering my tuition and other school-related expenses. They also ensured I had accessible transportation by providing me with a car.” - PH_06 “I have a PA (personal assistant) who carries him and pushes his wheelchair.” - PH_07a “My sister kind of took me under her wing at a very young age to help me get the services that I needed when I turned 18, and I wouldn't have my apartment without her.” - US_03 Family Members, Personal Care Assistant Inclusion Allies “I learned from [my friend] not to bully workmates, not to fight, and he always helps me…” - PH_01 “[The disability service organization] helps address my needs to promote friendship by engaging more [and] by attending the online and face-to-face events, and also involving public speaking.” - PH_04 “[My college peers] accepted me for who I am; no discrimination. They included me in groups when they went out.” - PH_05 “I was involved in the community [of] persons with disabilities… They encouraged me to go on and fight, ‘You need to have courage. You’re not different; you’re able.” - PH_06 “In high school, his teacher introduced him to the buddy system. That’s when he started to trust people without disabilities.” - PH_07a “I was used to having a para with me - a direct support staff who would help me write… It helps that you're in this disability services because you don't have to explain a lot ‘cause you have allies.” - US_02” “My team uses my support planner and my social [worker], where we do person-centered planning.” - US_03 Family Members, Peers in School, Disability Organization, or Support Group, Teachers, Personal Care Assistant, Direct Support Staff, Support Planner, Social Worker, School Counselor 66 “They (teachers) checked-in with me all the time.” - US_04 “I complained to the black community in which they helped me out to get a therapist, and [the] decision was very successful.” - US_05 “They gave me some ways of encouragement, like telling me not to give up, not to listen to what people are saying.” - US_06 “[My school] counselor is providing moral support, counseling me on how to be a better person, how to stand up for myself [and] do something, [and] how to not be limited by my disability.” - US_08 “[School counselor] was helpful to make sure that the changes that I needed were incorporated in the classroom. I think mostly it's my need for quiet places… [and] having teachers who understand that I need more time than others.” - US_09 Mentorship Support “At [work], she folds [clothes], so I trained her from the start to fold… So any work at home is an advantage at work.” - PH_02a “I (mother) volunteer to help them [in sewing]. No salary.” - PH_03a “They were there to support me during my training, so that when I enter full-time, I would know what to do in the future.” - PH_04 “It’s also important that the teacher educates the mother or the parents and teachers should work together.” - PH_05a “The teachers really were very supportive and helpful on how to get me into, where I needed to go for college and going on to for the rest of my life.” - US_04 “Apart from my school counselor, it was my priest. Those are the 2 main people that I normally discuss my career opportunities with, so they help me.” - US_05 “[My brother] coached me on how to answer some questions, [and] how to comfort myself during the interview. He told me a lot of things which really helped me a lot during the interview.” - US_07 “My job coach, he always wants me to be out - like talk to people. [I was] always on my own. So he'll give me an assignment to like a day [to] go out and talk to someone.” - US_08 Teachers, Family Members, Job Coach, School Counselor, Priest 67 Opportunity Champions “When the teacher in the post-transition saw that they were ready to let go, that’s when they looked for a possible employer for them.” - PH_01a “They (the teachers) saw that she had some talent, so she was one of the assigned artists at the sheltered workshop.” - PH_02a “Her teacher saw that she had the skill to sew… The teacher looks for places. That's how we expose their works for the community to know that persons with disabilities have capabilities.” - PH_03a “My mom and school recommended me to join the [disability] organization.” - PH_04 “When there were auditions, they (my friends) would tell me, ‘Hey, join this because the role suits you.’” - PH_05 “She (mother) provided substantial support by connecting me with professionals and advocating for my potential.” - PH_06 “His occupational therapist saw that he liked music, so what his therapist did was include him in the choir.” - PH_07 “I've always worked with a family member or a family friend.” - US_01 “They signed me up through the [disability] organization and that's how I learned about [the employer].” - US_02 “I have a case manager who basically reached out to the folks at [my current company].” - US_04 “[My high school friend] helped me to look for organizations where I can join and get information.” - US_07 “I have a close friend who was into it (transcribing). I was highly interested in it, and I asked him to put me through.” - US_08 Teachers, Family Members and Friends, Disability Organization/Su pport Group Peers, Employers, Therapist, Case Manager The first subtheme of the theme social capital, core support, mainly described the first-level support provided to the participants from home, school, and work, which included provision of basic needs, educational and moral support, and guidance. Secondly, the role of inclusion allies portrayed how their social network or groups provided accessibility needs, acceptance, and encouragement for emotional and professional clarity and direction. Moral support emerged as the most appreciated factor 68 among participants. Thirdly, mentorship support described the combination of formal or informal training and mentorship the participants received from living, learning, and working environments. Lastly, the social capital as opportunity champions essentially meant those who led the participants to uncover potentials or skills and also led them to participation in advocacy groups, employment activities, and other social opportunities. Some of the participants were directly contacted or referred for employment opportunities or received recommendations through their social capital about specific employers so they directly applied for the opportunities. In general, the people or groups they had deep connections with were highly influential in terms of the kinds of services or support they received. “I wouldn't be able to do what I do…[if] I never had that support and the people around me.” - US_02 “When you have those kinds of relationships, and they know what you want, then it is easier to help me find a job.” - US_03 Family members, personal care assistants, peers, and teachers had overlapping and critical roles in facilitating employment outcomes among individuals with IDD. Other professionals were also mentioned as aiding in promoting inclusion and participation in social and employment opportunities. Inclusion Barriers Although this study focused on the transition support from school to work, several inclusion barriers emerged which are (1) personal challenges and (2) societal barriers that hindered them to fully participate in a variety of settings. 69 Personal Challenges These personal challenges included their difficulty in engaging with social situations such as discomfort in seeking support, difficulty building trust, and uncertainty in pursuing long-term career goals due to the immediate focus on meeting daily needs, leading to decreased participation in the community. “You don’t go out of your house because you’re afraid of bullying.” - PH_06 “He had trust issues when it came to normal [students].” - PH_07a “I even considered removing my autism diagnosis from my resume because I didn't want others to judge me for my disability but for my ability.” - PH_05 “You know it's great [to be independent], but it’s really exhausting… I wasn't comfortable…[seeking help] before because I didn’t want people to feel obligated… It's really hard when everybody else doesn't need help but you do… Sometimes you may know what you need but you don't want the employer…or your coworkers to think that he's favoring you because you have a disability… I didn't make the goals for a job because I didn't know what I could do. Realistically, there were all these obstacles in my way, just something that was a necessity. I have to worry about [things] like, “How do I go through 8-something hours and not go to the bathroom? Because will I have anyone to take me to the bathroom?” - US_02 “I am not sociable because of my disabilities.” - US_08 Although the majority of the participants previously mentioned the alignment of their interests in their current job, there was evidence that socio-economic status could affect their fulfillment of desired work. Participants from both countries shared, “You need to find a job because I cannot afford it here… I’m staying [in this job] because I need the work.” - PH_05 “We came from a low class… I felt so sad that is why I went into being a [hotel] receptionist…so that I'll be the one paying for my little ones (siblings) while she (mother) would be the one paying for [my needs].” - US_05 70 When asked about policy-understanding, Filipino participants elaborated on disability-related benefits such as access to discounts and health insurance, rights against discrimination, accessibility law, and the Republic Act No. 10524 (2013) law which requires companies to hire people with disabilities for at least 1% of their workforce. Meanwhile, American participants generally shared about ADA. In addition, some participants also showed some knowledge gaps in terms of accessing resources and the policies surrounding disability. “My parents didn't speak a lot of English, so it was hard to get those [disability] resources… My parents don’t trust anyone to come into the home.” - US_02 “That kind of idea (policies) was not even there.” - US_05 “The idea I got from that [career] workshop, I could not really apply it because it was all long gone. I forgot about it.” - US_07 “Not totally everything, but I hear a little (about policies).” - PH_02a Despite these personal challenges, their initial hesitation in seeking support still enabled them to build their knowledge and confidence which increased their self- advocacy. “I have to learn how to [ask for help], and that weighed [me] to the top, because I underestimated people and their generosity…Because some people, I was scared to ask for help at all. But that’s what helped me (asking for help).” - US_02 “My family and friends convinced me not to remove [my autism diagnosis in the resume] because it’s about being honest with yourself and being honest with the company you’re applying to in the future.” - PH_05 Societal Barriers In addition to personal challenges, environmental barriers impacted their daily experiences at home, school, and in the community, along with uncontrollable 71 circumstances that affected their employment status. Examples of societal barriers included attitudinal, communication, physical, and institutional barriers, as well as the natural phenomena (Table 8). Table 8. Societal Barriers Types of Barriers Participant’s Response Attitudinal Barriers ● Discrimination ● Doubts “We didn't really hope for her to have the opportunity to get a job because we knew that there are instances where they are not accepted…opportunities are limited.” - PH_02a “I thought she didn't have the ability [to sew]. I didn't think of that at first.” - PH_03a “They just give you the easy work because they don't know what you can do, so I think that we're underestimated a lot.” - US_02 “Every time they had a budget cut, they let people with disabilities go first.” - US_03 “It was a bad bullying incident, so I let him stop [school].” - PH_01a “She would come home from high school crying because they were pulling her hair [and] pinching her because she was fair-skinned.” - PH_03a “The teacher concluded, ‘You can’t be in [this program]. You have to shift.’ What’s that about? He didn’t even fail any subjects.” - PH_05a “One of the panelists really questioned my disability… It was apparent that bias and subjective judgment could influence the selection process. I have observed instances where individuals, who are less physically or mentally prepared for the job, were chosen over more deserving candidates.” - PH_06 “Since he was in a wheelchair, he had a hard time, and I think he didn’t like being stared at [by his peers].” - PH_07a “I was being discriminated [by employers] because of my skin color, and…because of my disability.” - US_05 Communication Barriers “We didn't have laptops, so I would have to rely on people to help me write on paper… And all of the things, ‘Oh, zoom like a button…to access the booking.’” - US_02 72 Physical Barriers “You’re going upstairs, but it’s not very accessible for persons with disabilities, so it’s hard to move around there if you have a wheelchair.” - PH_06 “It (ramps) should be wide to fit bariatric sizes… Some malls don’t have an elevator to the second-floor parking.” - PH_07a “The whole office had a lot of fluorescent lights, noise, other people talking…It was just like total sensory overwhelm…When I would request accommodations, there's a lot of pushback on it.” - US_01 “[Businesses] say in writing that they're an equal opportunity company but the stall isn't wide enough for you to get your chair in there, or they don't have an adult changing table…and maybe some rail bars for you to hold on to.” - US_02 Institutional Barriers “Just because a particular organization promotes inclusion and acceptance, it does not mean they are 100% inclusive and accepting…there are still parts they need to learn.” - PH_05 “There weren't a ton of resources to help get the kind of jobs that I was looking for… They did [transition planning], and I personally didn't find that helpful.” - US_01 “I don't have anyone (direct support staff) to help me survive. So it was that kind of thing about preventing me from getting a job… They didn't have staff to take me for transportation reasons…” - US_02 “I also tried to go to social media to look for groups or pages for people who actually identify as intellectually disabled. So I think I joined some of them, but outside the social media, I did not really have access to join any of those organizations.” - US_07 “They also have [transition planning], but because of the [big] number of students, there are limitations.” - PH_03a “Since it’s a public school, one teacher is for several students. So it’s hard [because] they’re not focused on… If you suddenly remove them [in the sheltered workshop], where will they go?” - PH_07a Natural Phenomena ● COVID-19 ● Typhoons “It (job) was continuous for more than a year, and then it was lost due to the pandemic.” - PH_02a “We are just waiting [for employer response] because the typhoon is a bit of a hindrance… There were consecutive 73 typhoons here.” - PH_03a “I lost all those connections [outside the state] as soon as COVID[19] hit.” - US_03 Given these examples, some participants described how attitudinal barriers can come from parents’ in-denial or initial doubts of their children’s skills, employers or human resource professionals’ low expectations, the school’s bullying climate, and teacher’s intolerance. Communication barriers included lack of assistive technology and its inaccessibility. Common physical barriers that often limited full social participation included inaccessible stairs, stalls, and ramps, the absence of elevators, handrails, and adult-changing tables in public spaces such as malls, schools, and businesses, along with environments that can be overwhelming due to sensory stimuli. Institutional barriers were also present when there were challenges within the disability programs or community institutions such as gaps in resources, opportunities, and inclusion practices. “It's hard with the community because you have to find those resources on your own… A lot of employment services have people [who] will help you but they're not people with disabilities, so they don't know your body.” - US_02 Although some participants were aided by job coaches and the community resources in the transition process, some participants experienced difficulties in the type of support they received from the professionals and the community. Such challenges included the absence or the disconnect between their needs and the services provided, and the bureaucratic processes in terms of availing services related to their disabilities. "I tried like job coaches…And I'd say, like at the [master’s] level that I'm doing, they haven't been super helpful…with what I'm trying to do at work.” - US_01. “It was a lot of hard work with finding a good job coach who listened to me.” - US_03 “People don't know how to accommodate or be inclusive. People think inclusivity has to be something physical, but it's not.” - US_02 74 “If I want to rate them (the community), I would just give them 1 star out of the 5 stars. I will seriously give them one star because they did not really help a lot.” - US_05 “I don’t understand why [using] a booklet is needed [to avail disability-related discounts]. Why not just use the [person with disability] ID?” - PH_05 “I did not actually have [access to disability services] because my brother tried to apply, but I think he complained. He told me that the requirements…[were] really much. So it couldn't really go through.” - US_07 Inclusive Workforce Placement & Outcomes After describing the inclusion barriers and support activities they experienced prior to employment, the participants were able to share their inclusive employment experiences and their influence on the trajectory of their personal and professional lives. This theme represented the (1) employment retention support (Table 9) and (2) employment impact as they were placed into an inclusive workplace. Employment Retention Support When asked about their previous or current work experiences, the participants were able to share some factors that allowed them to stay and be fulfilled with their jobs including having an inclusive team where there is a culture of understanding, helpfulness, friendliness, and collaboration among colleagues in the workplace; providing natural supports and accommodations which includes having flexibilities on time and work set- up; conducting employee training or professional development opportunities; carrying out regular check-ins which may be formal or informal communication supports; and recognizing their work efforts. Participants were also able to manifest workplace adaptability which allowed them to maintain their work. This trait was expressed through their curiosity or desire to learn and explore new things in their job, passion or the 75 alignment of their interest, knowledge, and skills with their work, and sociability or being able to get along and portray good relational values with colleagues. Table 9. Employment Retention Support Employment Retention Support Participant’s Response Inclusive Team “They are understanding.” - PH_01 “They are happy to help me. They help with work and assist.” - PH_02 “They help her.” - PH_03a “My current networks help me maintain my job by collaborating with other clients.” - PH_04 “Find a place to work that is just supportive. So where I work at now, everyone knows I have autism.” - US_01 “I feel really safe. I feel like I can ask for help. I feel like there are no barriers.” - US_02 “They know me pretty well, and so they know if I'm having a bad day. They'll just cheer me up.” - US_03 “That's a huge support – having employers that can notice that you need that time to be able to give you that support. [My company] is a family.” - US_04 “They also teach me and I learn…They're really helping.” - US_05 “They give me good treatment. They’re friendly.” - US_06 “[The] collaboration with the staff and good relationship with the supervisors and the management of the company…these contribute to my satisfaction in the job.” - US_07 “My colleagues know of my condition, and they know how to treat me, so we run things smoothly.” - US_09 Accommodations ● Natural Supports ● Accessibility “She had a [work] buddy who assisted her with what to do…She was the one who looked after her or gave instructions on what to do.” - PH_02a “My workplace and my grandparents’ house are not too far away.” - PH_04 “I had two other jobs that I was most successful at [where] I had a mentor…They made [our office] under 76 the principles of universal design, so it's really nice to work at.” - US_01 “[My employer is] really accepting of all people with disabilities no matter what their communication style is.” - US_02 “My schedule is pretty flexible… If I am not in a certain hour, and I have a meeting, they'll record it so that I can watch it and give them my feedback.” - US_03 “Disabled folks are able to work right alongside someone who is non-disabled.” - US_04 “The amount of work we get as an employee…is not high…The work is hybrid… [Where] I currently live is just 14 minutes away from the company.” - US_07 “I also think consistent routines in the organization [helps].” - US_09 Employee Training “To maintain my job, I was being trained so in the event that anything happens, I can take over.” - PH_02 “I am the one [the company] trained…and I didn’t expect that this would be one of the keys to being successful in my career.” - PH_06 “We talk a lot about not only with the disabled community but also with the LGBTQ+ community as well.” - US_04 “[Monthly training] was very helpful because it makes the work line smooth and everything going faster.” - US_05 Regular Check-in “[My manager] checks what I do in the office every day to make sure that I am fully productive.” - PH_04 “[The six-month evaluation] is helpful because you also know what rate your boss is giving you.” - PH_06 “I would say clear communication. I have one-to-one [conversation] with my boss every week.” - US_01 “We have check-ins on a weekly basis which helps me a lot.” - US_03 “[We] have these check-ins as a group on top of the one-on-one.” - US_04 “It was really helpful to me because having communications with your supervisor, you can actually know if you're doing better or not, and corrections can come in.” - US_07 “If I have any challenges, I'll just talk to [my job coach] about it.” - US_08 77 Recognition of Efforts “We are grateful to those who support her [hand-made] products.” - PH_03a “What adds to my satisfaction is the fact that what I contribute is recognized and valued. It’s really rewarding…” - PH_06 “When they see him selling [products], they would really buy.” - PH_07a Workplace Adaptability ● Curiosity ● Passion ● Sociability “What helps me maintain my current job…is my consistent willingness to learn more skills, make new friends, advocate for inclusion, and accept criticism even if it’s a bit harsh.” - PH_05 “I am always willing to learn from others because it’s not necessary that you are always right...Overall, [my goals and work are] aligned and even expanded…” - PH_06 “Not to be afraid to try new things… Always showing people that they're appreciated.” - US_02 “Try new opportunities…You should try making friends.” - US_05 “I stay at my job because I am happy with my work… I know how to work like others. I listen, and I am good, and I follow the rules.” - PH_02 “I enjoy it… That's [related to] my skill.” - PH_03 “It is related to my strength.” - PH_04 “I have fun doing my job.” - US_01 “I love working for a job, or an employer who is a woman.” - US_04 “I just developed [a] passion for it.” - US_06 “It's aligned because it's all about the platform and the opportunity to do what you want to do in a formal way.” - US_07 “[My job] was something I got interested in and loved…I'm not doing something else. I'm doing what I really love doing.” - US_08 “I get to exercise what I've been learning over the years. It's somewhere I can apply what I've been learning, and it's also encouraging me to gain more skills and become better at my role.” - US_09 “I do everything that’s asked of me.” - PH_01 “I'm a people person so I get to chat with everybody; [it] makes my job a lot easier.” - US_03 78 Employment Impact This study found that the participants’ employment led to positive personal and community impact, namely their (1) advocacy for disability inclusion, (2) meaningful connections, (3) monetary autonomy, (4) personal and professional growth, (5) productivity, and (6) purpose. In terms of heightened advocacy, the participants shared instances of giving back to their workplace, community, and their family. They also discussed additional professional goals and aspirations related to inclusion, along with ongoing efforts to advance disability inclusion both within and beyond their workplace. “I am happy to stay at work and to help my parents and siblings.” - PH_02 “I like that my job positively contributes to a community that I'm a part of - the disability community… A lot of my current job is like doing disability inclusion trainings, or having conversations about disability with people in the community.” - US_01 “I like when I help folks in my job, because that makes me feel better, that I made a difference in someone's life…This year, I'm going to take the lead and meet with some legislators and tell my testimony.” - US_03 “[It] fulfills my life in a way that [it] also supports my community, and it also is a way for me to give back to my community” - US_04. “I've also tried helping other people, like being available to help other people financially.” - US_05 “My goals evolved to include advocating for a fair and inclusive hiring process…I am actively involved in advocacy and leadership roles…to work on projects that promote accessibility and inclusion both locally and internationally.” - PH_06 “To be inclusive… it's just like including you in the process… It's just giving them space to be in the room, period.” - US_02 79 Through employment, participants were also able to make meaningful connections that contributed to a sense of belonging and fulfillment both personally and professionally. “I'm very satisfied with my life right now, and what contributes to that is having an employee or employer trust me and understand where I'm coming from.” - US_04 “When we go to conferences, you meet a lot of new self-advocates.” - US_03 “You also get to meet people when you're working, so it's nice being able to meet people.” - US_01 “I’ve grown to love [my workplace].” - PH_07 “We’re all the same here, so I like it here. It’s like that’s the place for him aside from home; the next safe place for him.” - PH_07a Participants also shared that because of work, they have increased monetary autonomy, allowing them to buy personal needs and wants without asking for assistance. “I can spend my money at arcades to play. I buy food, pay for transportation like buses and jeeps, and so on.” - PH_01 “She says she will help buy her medicine.” - PH_03a “In the US, you really have to be employed to have good health insurance, so it's nice having good health insurance.” - US_01 “Being employed helps me pay my bills, pay my rent, but also like going to the bar with some friends, going to Karaoke, [and] going shopping.” - US_03 “The factors that really make me feel more satisfied is getting to buy what I want, [and] getting to go where I want to go.” - US_05 “Now, I'm able to pay my bills on my own and also have some savings without going to ask for help.” - US_06 “I wouldn't need to look up to my siblings to give me the financial support to take care of myself.” - US_07 80 Additionally, employment allowed the participants to gain personal growth, shaping them to become more independent and responsible. “Their job became a bridge and a big help to them and it boosted her independence and she is very proud.” - PH_02a “I’m proof that a person with autism can live independently, make decisions, travel, and work.” – PH_05 “The job…taught me how to be independent, although I don't really believe in independence; I believe in interdependence because I believe that in the job world, no matter what it is or what you're doing, you have to depend on people.” - US_02 “I no longer seek [to] go and look for people to help me one way or the other. I can do it now on my own.” - US_06 “Working has also shaped my life in such a way that I can take care of myself.” - US_07 “I get to grow more and not be limited.” - US_08 “He becomes disciplined because he wakes up early and prepares his breakfast and packed lunch.” - PH_01 Relative to their personal growth, participants also grew professionally, improving their professional learning and standing. “I’m very honored because my role has grown. I also learned more social skills, especially in a professional setting.” - PH_05 “I’ve been able to manage my work efficiently and even thrive in my career.” - PH_06 “When I first started, I didn't really have much capacity, but now, a few years later, I get [employment benefits] like everybody else.” - US_03 “Day by day, I improve, and gradually I'm moving higher.” - US_05 “I become independent in the job down the line.” - US_08 81 Interestingly, some legal guardians present during the study interview shared their sole expectation for their son or daughter to be independent and productive, rather than highlighting employment goals or earning money. “What I want for him is to be independent [and] functional. Just his functional skills…most especially he’s an only child, and when we leave him, of course, we want to know he can manage on his own.” - PH_01a “I really want her to be independent no matter what happens. So if anything happens, like how parents worry if something happens to us [and] we are gone, at least [she] is ready.” - PH_02a Ultimately, respondents indicated that being employed means being productive and having a purpose which led to joy and a sense of pride. “I can be a productive member of society, because I used to be one of those that just waited for my family to come back, or waited until I needed to pee.” - US_02 “It gives me an opportunity to do more things out in the community than if just staying home all the time.” - US_03 “Having a job to do is really good, and it’s good for your mental health. And also, you're putting your brain to work; you're not just sitting being idle.” - US_07 “I am happy because I help there [at work].” - PH_02 “I see that she is happy with what she is doing.” - PH_03a “I feel a strong sense of pride knowing that I am making a difference both within my immediate work environment and on a larger scale.” - PH_06 “I am part of something bigger and part of a community that I want to see spread… It was only through my employment that I found that that’s what I wanted to do.” - US_02 “They (employers) have that nurturing aspect of a place where it’s safe and no one gets degraded because of their disability. And that has a huge impact on somebody's career choices - the way that they are treated in the workplace.” - US_04 82 Chapter Summary This study found that disability-specific and general programs and services were helpful to prepare persons with IDD to employment, but the social network played different roles to smoothly transition them to employment opportunities despite the personal and social barriers they navigated. This study provided further evidence that gaining employment, whatever way they accessed it, led to positive personal and community impact. 83 Chapter 5: Discussion This study looked into what the support from education to employment looks like based on the lenses of employed individuals with IDD both in the US and the Philippines. Considering different contexts with varying programs they went through, this study found common transition experiences of Filipinos and Americans with IDD helpful for them to secure jobs. This study found that participants were able to explore both disability- specific and general activities and services both in school and the community that increased their social skills and life skills as well as their work readiness in employment settings. Although combined special and mainstream education was recommended for attaining career success among individuals with disabilities (Shah et al., 2004), this study found how being exposed and trained in job settings, attending transition program, receiving career counselling and job-seeking support, and getting involved with extracurricular activities can also help develop useful skills for career readiness and placement (Mazzotti et al., 2021; Clavenna-Deane & Coates, 2022), especially getting exposed in the community settings and its social expectations (Anderson et al., 2024) and having consistent people support throughout their education to employment journey (Clavenna-Deane & Coates, 2022; Sigstad & Garrels, 2022; Schwartzman et al., 2025). It is also important to note that civic institutions, such as the church, government, and disability agencies or organizations provide not just support for employment but also in other aspects of their home or educational lives. Schools that have internship programs and companies providing these opportunities are also highly influential to the 84 employment success of individuals with IDD (Schall et al., 2024; Avellone et al., 2023; Lindstrom et al., 2014). Many of the participants also shared about gaining jobs through online job searching (Sundar et al., 2018), but many participants also shared that simply their family members' referrals or becoming associated with other social networks such as peers and groups led to recommendations for employment opportunities (Petner-Arrey et al., 2016; Sundar et al., 2018). Some of the participants described initial reluctance to seek employment due to a lack of confidence in skills or prioritizing more immediate needs (Timmons et al., 2004). The participants shared how their social capital provided them holistic support in home and employment settings. This corresponds to the literature's need to see how the informal and formal support through the services and the social connections of individuals with IDD impact their transition and placement to employment (Petner-Arrey et al., 2016; Trainor et al., 2020). Both professionals and members of their family fulfilled the roles of mentoring for career guidance and being allies and opportunity champions for social inclusion as they navigated inclusion barriers present not just within the environment but also internally (e.g., doubts, hesitance to seek help, trust issues). This shows that both professionals and immediate family are critical to support the individual with IDD to meet personal or professional goals as they navigate transition to employment (Schwartzman et al., 2025; Schutz & Carter, 2022). However, it was well-emphasized that employment services that some participants received do not directly respond to their needs (Kramer et al., 2020). 85 Looking at some of the identified employability skills of the participants, the findings in this study are consistent with other research that has suggested that technology skills, self-advocacy, self-determination, and interpersonal skills, including their parents’ expectations promote post-school employment success (Mazzotti et al., 2021; Sigstad & Garrels, 2022; Gilson et al., 2022). Although internships or paid/unpaid work experiences led to an increase of their work skills, and job seekers initiating contact to apply for positions (Schwartzman et al., 2025; Sundar et al., 2018), these experiences, along with employers who made significant efforts to directly reach out to them to provide the job position, further defined their career choices or goals and discovery of their skills; hence, the importance of the businesses’ extensive effort to tap into the disability workforce. Moreover, this study revealed that the majority of the participants are in a current job that aligns with their interests and their educational background (Gilson et al., 2022), although a few participants reported staying in a job out of economic need until they were able to get a job that was actually their desired work. The participants also largely talked about the various barriers they encountered within the school, businesses, and the general community. Ableism, racism, inaccessibility, gaps in resources and intended inclusion practices, and natural phenomena hindered their access to employment aside from their personal struggles to self-advocate and adapt socially as they transition from school to work. These discrimination and stigma reflected in more than one setting led to barriers to employment (Sundar et al., 2018; Sinclair et al., 2024; Alson et al., 2019; Gilson et al., 2022). 86 On the other hand, participants mentioned positive employment outcomes after going through these barriers implying that disability is socially constructed. They mentioned feeling supported at their workplace means gaining access to accommodations and accessibility needs and having accepting colleagues who provide regular help, training, check-in and recognition of their work efforts; hence, they feel satisfaction in their current jobs (Schwartzman et al., 2025; Sigstad & Garrels, 2022). This is consistent with previous research that has indicated that employees with disabilities who receive workplace support through colleagues are more likely to advance in their careers (Sigstad and Garrels, 2022) and have high retention rates since they develop their passion at work, stay where they experience a sense of productivity and belonging, and are able to be influential contributors in their communities (Aichner, 2021). This may also be implied by the fact that the participants disclose about their disability in the workplace and assert their needs; hence, work accommodations and natural support were provided to them to facilitate their success in the job (Corbière et al., 2014; Jans et al., 2012). Although a few of the participants in the Philippines are currently in working in sheltered workshops, the participants’ responses suggest that they reap the same employment outcomes as those who are working in competitive employment settings, such as increased purpose and productivity, expanded meaningful connections, professional and personal growth, monetary autonomy, and ignited advocacy for disability inclusion. Although competitive integrated employment leads to more sustainable outcomes, for some, having meaningful productivity outside the home or school should be the focus when transitioning to employment (Butcher and Wilton, 2008) 87 as it certainly provides them a sense of joy, pride, and fulfillment in their current status of life (Sinclair et al., 2024; Schwartzman et al., 2025; Randall et al., 2023; Lindstrom et al., 2014). Taken as a whole, support from school-to-work begins with the presence of people’s support at home and in school that directly responds to their strengths, needs, and culture while managing several personal or societal barriers. The programs and activities, regardless of their educational placement and context, strongly support their personal growth and preparation for employment as long as it is responsive to their needs, strengths, and culture. It is through their social network, who often know them best, and community participation that they were able to manage inclusion barriers and become more aware of employment opportunities leading them to personal and professional growth while making a difference in others’ lives. Practical Implications and Recommendations Based on the findings of this study, recommendations for practice are outlined for individuals with IDD and their families, and the relevant stakeholders such as teachers and school professionals, employers and civic institutions, who play significant roles in the transition of individuals with IDD. An operational model with recommendations for transition support is formed based on the study’s findings (Figure 2). 88 Figure 2. Operational Model on Transition Support towards Inclusive Employment and Impact | This model shows the core values of inclusion such as providing accommodations, accessibility, and acceptance, along with the social capital support. Within these core values is where individuals with IDD and community stakeholders operate towards achieving inclusive employment and impact. Recommended activities are listed based on the results of this study. Recommendations for Individuals with IDD and Families Based on the available programs, ensure participation in general and special education activities that promote career awareness and strengths exploration, guided planning, preparedness to college or employment, and increase of social and communication skills to support the transition from education to employment (Mazzotti et al., 2021; Schutz et al., 2023). Families also play an important role in all aspects of transition; hence, the importance of setting expectations for their sons or daughters 89 (Simonsen & Neubert, 2013; Southward & Kyzar, 2017; Mazzotti et al., 2021; Schutz et al., 2023; Lindstrom et al., 2014), while acknowledging their role not just during the transition planning process but also in advocating and maintaining their children’s employment. Similarly, individuals with IDD are urged to set community and employment goals and maximize relevant professional support such as working with school counselors, transition teachers, job coaches, therapists, or personal care assistants among others. Although resources, policies, or programs may be limited in some contexts, consider reaching out to government or non-government agencies, service providers, or even peers or support groups to get more information and access to disability services and professional support based on transition or accessibility needs at home, community, or employment settings. Increasing online job searching skills is also recommended for direct job applications. Lastly, given that educational and employment supports are often directly offered to individuals with IDD, sometimes without enough options (Scott et al., 2021; Benson et al., 2021; Kramer et al., 2020) and individuals’ gaps in self-advocacy or self- determination, it is recommended to maximize the use of student, family, peers, and community assets for mentorship and accessing employment opportunities, particularly in cases where formal professional supports are inaccessible, inconsistent, minimal, or unavailable after school. However, formal services mandated by policies or the law are recommended to reinforce interdependence (Friedman, 2021). 90 Most importantly, individuals with IDD and families are encouraged to explore communities of belonging outside the home or school. These can be regular areas for socialization, volunteering, or other spaces to connect and collaborate productively or recreationally with diverse or similar-identity groups. Through this expansion of connections, extensive natural support will be granted (Sanderson et al., 2024) and employment opportunities may arrive and support career readiness or enhancement of employable skills (Jans et al., 2012; Schwartzman et al., 2025). Recommendations for Educators and School Professionals Although transition planning is critical for every student preparing for post-school employment, it is imperative to strengthen the implementation of anti-bullying policies within the school settings that specifically highlight the importance of social participation of students with disabilities in all learning areas and settings. Also, consider student and staff training that aims to reduce biases and discrimination in providing opportunities for students with disabilities in the educational setting. It is also recommended to intensify self-advocacy instruction for students with disabilities to confidently express certain needs and accommodations for their transition plans and to increase empowerment and lessen challenges dealing with professional support who may overlook their rights or exact needs. Likewise, support families in advocating or increasing their expectations for their child by demonstrating that their child is capable to participate in work experiences (Simonsen & Neubert, 2013). Also, increase person-centered or culture-centered approach in planning and teaching approaches wherein asset mapping, or identifying existing school and community 91 resources or job opportunities, can be incorporated to ensure a responsive and sustainable support system towards the desired job. Moreover, exposure to extracurricular activities in school and to community and social activities should be expanded and facilitated through the active partnerships formed with public and private institutions offering opportunities and disability employment-related resources (Clavenna-Deane & Coates, 2022). Where relevant, school administrators are also encouraged to reinforce the presence of enough professionals for a tight interagency collaboration and to provide adequate support to teachers in transition services implementation. Lastly, consider providing or referring to more career exploration opportunities that may not necessarily be directly offered or embedded within the school curriculum or activities, so students or families are empowered to identify untapped programs or workplaces outside the school that can further develop their employment goals and aspirations. Through expansion of partnerships with community agencies or employers aligned with students’ job aspirations, students can be smoothly matched for community or work opportunities after school. Recommendations for Employers and Businesses Regularly implement disability-sensitivity or bias awareness training among leaders and colleagues within the business community while considering evaluation measures to assess the impact of such initiatives in addressing ableism and racism within the company. Moreover, recalibrate the values and practices of the company if these are consistent with the promotion of accessibility and acceptance in hiring and retention for employees with disabilities. Ensure that social, physical, institutional, and attitudinal 92 barriers are appropriately addressed by setting a practice to directly consult employees with disabilities about accommodation or support needs to promote a culture of disability employment inclusion with fidelity. Furthermore, employers are encouraged to simply open positions for hiring among persons with disabilities and reach out to schools and disability organizations or public agencies for collaboration in providing job tours, experiential job learning, and ultimately, enhancing efforts for accessible recruitment both online and in-person, as well as for retaining employees with disabilities through provision of training, accommodations, including transportation services, if relevant. Recommendations for Civic Institutions Increase dissemination of information regarding existing resources and opportunities and provide more consultation opportunities with the disability community to ensure that these are responsive with their needs. Similarly, consider hiring support staff who are also individuals with disabilities who can offer expertise on providing certain disability services. Beginning high school or earlier, more initiatives should be recognized by the disability community and families in terms of how these services, resources, or opportunities can be accessed without difficulty; hence, the importance of school, community, and workplace partnerships with regular information sessions or resource fairs in the school setting, including advocacy training to families who often serve as facilitators for employment. Lastly, government support is highly critical in funding personal and professional services from school to work settings, so maintenance of these disability programs or 93 community resources is essential for employment opportunities leading to favorable employment outcomes and desirable quality of life. Both countries are recommended to increase disability policy orientations and training for civic participation among the disability community. Recommendations for Future Research Although this study identified the support activities that responded to the needs of individuals with IDD in their transition from school to work, future studies can prospectively test the effectiveness of identified employment preparation activities for employment placement among individuals with IDD. In addition, researchers should examine the effects of identified employment preparation activities on the school exit rates of individuals with IDD to determine whether meaningful employment preparation reduces school exit rates. Research also could provide important information regarding whether the effects of employment preparation practices are influenced by the identity of the individual with IDD; whether employment support practices consistently lead to the same outcomes or benefits for individuals with intersecting identities (disability, gender, race) as for those without intersecting identities. Moreover, this study suggested a transition support pathway among individuals with IDD; future studies can explore how a specific disability service or combination of support influences the time it takes from job-seeking to securing preferred work, their effect on job retention, and their correlation with life satisfaction. Similarly, this study found some gaps in the level of participants’ understanding on disability rights and 94 policies, so further studies can explore the implications of the level of policy understanding in securing employment. It may also be interesting to conduct large-scale studies on the existence or absence of transition data, policies, and programs internationally and compare how the impact of effective employment preparation services impact quality of life for individuals with IDD. Likewise, research that explores the effect of forming or enhancing international policies specific to transition may lead to combating global issues of disability unemployment and break down systemic issues that exist both in developing and developed countries. Practical Implications per Context Although the operational model and general recommendations described above are recommended to both countries, there are certain components of the model that are distinctly relevant for contextual adaptations. Below are the practical recommendations in the Philippines and in the US (Tables 10 and 11). Table 10. Contextual Adaptation of the Operational Model towards Inclusive Employment and Outcomes in the Philippines Model Component Practical Recommendations Civic Institutions & Coordinated Services ● Responsible government agency to reinforce mandates that allocate resources for provision of appropriate school facilities and hiring/appointing of a specific staff who liaises with businesses or other community opportunities (i.e. transition specialist, job coaches, or vocational counselors) ● Responsible government agency to provide grant opportunities and accessible disability services and/or human resources (i.e., case manager, social worker) useful for personal and professional development 95 ● Responsible government agencies to provide updated data on school graduation and employment to further support data-informed transition practices. Collaborated Planning for Post- school Placement ● Appointed government agency staff from DOLE, DSWD, TESDA, PESO, CHED (Commission on Higher Education), teachers, administrators, and families or personal care assistants, school counselors, and other relevant stakeholders (i.e., disability agencies/groups, social workers, job coach, therapists, etc.) to meet together in transition planning and strengthen mandate implementation for counseling, vocational training, job coaching, and job placement (Republic Act Nos. 11650, 7277, 10524). ● Maximize parent groups as resource. ● Student to have a transition plan as early as 14 years old, and be updated at least annually. Teachers and School Professionals ● Promote student participation in general education set-up, especially completion of high school ● Develop or increase training of pre-service teachers or school staff on the transition processes, especially the implementation of transition plans, assessments, and activities. ● Increase implementation of employment preparation activities such as Career Counseling, Career Fairs and Seminars, College Readiness Program, Resume-writing and Mock Job Interview, and Workplace Learning (Volunteering, Internships, Student- led enterprise, Actual Job Experience) ● Structure employment training partnership with at least one employer aligned with students’ needs and skills Employers and Civic Institutions & Cemented Partnerships & Mutual Presence ● Sharing of existing resources for job facilitation (i.e., extension and expansion of services by the general service providers or agencies to the disability population) ● Policy-makers to mandate a precise post- school placement and services once learners 96 with disabilities reach 24 years old. Future Research ● Develop a contextualized transition assessment tool. ● Further research on the transition programs and practices across the country Table 11. Contextual Adaptation of the Operational Model towards Inclusive Employment and Outcomes in the USA Model Component Practical Recommendations Civic Institutions & Coordinated Services ● Promote individuals with IDD as disability service providers ● Make access to disability services less complex and culturally responsive (i.e., reaching out to families who are unlikely to connect with service providers) Collaborated Planning for Post- school Placement & Acceptance ● Ensure person-centered and culturally responsive services during transition planning and provision of employment services and opportunities ● Facilitate accessible referrals for participation in disability groups Teachers and School Professionals ● Prioritize the self-advocacy instruction as part of the pre-ETS to amplify their voices in the transition planning and increase their understanding of their rights and available resources ● Expand employment program options aligned with interests Employers and Civic Institutions & Cemented Partnerships & Mutual Presence ● Heighten information dissemination among disability community to locate relevant resources within the community ● Promote culturally sensitive hiring approaches Limitations There are several limitations of this study that should be noted. First, some of the interview questions focused on the participants’ high school and pre-employment 97 experiences. Their recall of educational and job-seeking experiences after a year or more may have been distorted despite sharing the interview questionnaire in advance for their preparation; hence, a need for varied data collection tools. Second, the interpretations of the study may have been affected by researcher bias despite practice of reflexivity. Third, findings on employment outcomes or quality of life are subjective and may have not fully captured the long-term and measurable impact of the transition support as the study did not gather information on the time since participants exited school. A longitudinal study on this could objectively inform this phenomenon. Fourth, because the participants’ employment settings ranged from sheltered workshops to competitive integrated employment, with some of them employed under a disability-service employer, results may not fully represent the transition and employment experience of those hired in other sectors. This may have produced differences in findings. Fifth, the absence of direct participant input about practical suggestions for programmatic or policy change to optimally improve school-to-work transition and employment attainment may have limited the depth and applicability of the recommendations to challenge prejudice or inequitable practices that continue to add as inclusion barriers in the society. Exploring family and community stakeholders’ insights may also add essential inputs in this. Lastly, although similarities in transition experiences were identified, variations in school activities or transition support programs and attitudes still exist, so it is relevant to note that not all identified professionals and practices that were found in this study may be readily applicable in the school or employment setting in each country; hence, a limitation on the generalizability of the results. 98 Conclusion This study provides substantial perspectives of individuals with IDD regarding their transition support experience from education to employment. Although limitations on context and culture may differ between the said countries, the similarities in people and community support that emerged in this study, including the barriers they navigated, can inform both school and community stakeholders to pursue a smooth and responsive transition support that allow inclusion in school, employment, and community settings. 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Focus on Exceptional Children, 38(9), 1–12. 117 Appendices Appendix A Demographic Questions Participant Name: Participant Code: Pronouns: Date: Time: Interview Location: Highest Educational Attainment: Residence: o City o Suburban/Peri-urban o Rural Work Location: o City o Suburban/Peri-urban o Rural Job Sector (Check the most recent): _____ Accounting/Finance _____ Engineering __ Others, pls. specify: _____ Admin/HR _____ Healthcare _____ Arts/Media/Communication _____ Hotel/Restaurant _____ Building/Construction _____ Manufacturing _____ Computer/IT _____ Manpower/Janitorial/Housekeeping _____ Customer/Support/Help Desk Services: ( ) Voice ( ) Non-Voice _____ Education/Training _____ Sciences _____ Encoding/Clerical _____ Sales/Marketing Job Role: Annual Salary Range: [For US participants] o $25,000 and below o $25,001–$49,999 o $50,000 and above Monthly Salary Range: [For Philippine Participants] o Php 5,000 and below o Php 5,001 – 20,000 o Php 20,001 – 80,000 o Php 80,001 and above Age Range: o between 18 to 22 years old o between 23 to 30 years old o between 31 to 45 years old o 46 years old and above Type of Disability (Check all that apply): o Autism Spectrum Disorder o Down syndrome o Intellectual Disability o Cerebral palsy o Brain Injury o Fetal Alcohol Syndrome o Spina Bifida o Other: 118 Gender Identity: o Woman o Man o Transgender Man o Transgender Woman o Gender Non-binary: Gender nonconforming, Genderqueer, Nonbinary o Prefer not to say o Other:________ Sex assigned at birth: o Male o Female o Intersex Sexual Preference: o Asexual o Homosexual: Bisexual, Gay, Lesbian, Transgender, or Queer o Heterosexual or straight o Questioning o Prefer not to say o Other [For US participants] Race/Ethnicity: o American Indian or Alaska Native (e.g., Navajo Nation, Blackfeet Tribe, Inupiat Traditional Gov't., etc.) o Asian or Asian American (e.g., Chinese, Japanese, Filipino, Korean, South Asian, Vietnamese, etc.) o Black or African American (e.g., Jamaican, Nigerian, Haitian, Ethiopian, etc.) o Hispanic or Latino/a (e.g., Puerto Rican, Mexican, Cuban, Salvadoran, Colombian, etc.) o Middle Eastern or North African (e.g., Lebanese, Iranian, Egyptian, Moroccan, Israeli, Palestinian, etc.) o Native Hawai`ian or Pacific Islander (e.g., Samoan, Guamanian, Chamorro, Tongan, etc.) o White or European (e.g., German, Irish, English, Italian, Polish, French, etc.) o Other:___________________ __ [For Philippine Participants] Native Language: o Filipino (Tagalog) o Cebuano o Hiligaynon (Ilonggo) o Ilokano o Waray o Bikolano o Pangasinense o Kapampangan o Tausug o Ingles (English) o Other: Occupation (check all that apply): o Student o Part-time employee o Full-time employee o Business owner Length of Employment: o between 6 months to 1 year o between 1 year to 2 years o more than 2 years o Not applicable o Other: 119 Appendix B Interview Questionnaire Background: I appreciate you making time to meet with me today. I'm Rose, a graduate student researcher at the University of Minnesota. My focus is on learning about the employment preparation methods that have led individuals with developmental disabilities to find jobs after finishing school. Part of the process is exploring what has worked for you as you get into where you are now, so we can share effective practices within the disability community and ensure more individuals with disabilities remain employed. It would greatly assist me in capturing your story if I could record your responses. Would you be comfortable granting permission for recording (video and/or voice recording)? Rest assured, your identity will not be revealed through your answers. If not, I'll be ready to take thorough notes instead. Stage: Our study would like to learn more about how people with intellectual and developmental disabilities have found jobs after school. We'll look at what helped you get where you are now throughout your education and career planning. Think back to a time when you were still studying, looking for a job, or attending training to get a job that you want. 1. How would you describe your support system from the beginning of high school until you got a job? ● Listen for: family, groups/organizations, community agencies, social capital 2. Tell me about the essential activities you had in school that supported your goal to get a job. ● Listen for services and supports in: o Secondary (Special Education/General Education) o Post-secondary ● Probe on how it responded to their needs: assessments, planning, instruction, support, activities, relationships o What assessments did you receive? o Who was present for your transition planning? o What instruction, support, and activities did you find useful? o Who are the people you remember supporting your needs? 120 3. Tell me about the relevant activities you sought and received as you look for a job and until you get it. ● Probe/Listen for services and supports in: o Early adult life (Disability Specific, Generally Available) ● Listen for skills and attitudes exhibited o job-searching skills o job trainings o referrals o self-advocacy o resilience 4. How does the community been helpful to you as a job-seeker with disability? ● Listen/Probe: funding, laws, policies, resources o Did you receive funding? Where? o Did you review or get orientation on laws, policies, and resources around disability? o Did you access disability services support from your local government? non- government organizations? 5. Thinking back to your first job or your current experience, what do you think helps you to maintain your job? ● Listen/Probe: Opportunities, Network, etc. o Are there any professional development opportunities? annual evaluations? o Does your current network support you to sustain your job or business? 6. Reflecting on your employment goals from when you started to now, are there any changes or continuities? ● Listen/Probe: Alignment to career preference o How does your current employment align with your career preferences? 7. In your role as an employee or business owner, how satisfied do you feel with your life right now? ● Listen/Probe: Level of satisfaction o What aspects contribute most to your satisfaction? 121 Appendix C Recruitment Poster Sample 122 Appendix D Consent Form Sample Title of Research Study: Exploring Culturally Responsive Preparation Activities for People with Disabilities: A Pathway to Achieving Post-School Employment Success, Protocol Number: 00022161 Investigator Team Contact Information:Jennifer McComas, Ph.D. For questions about research appointments, the research study, research results, or other concerns, call the study team at: Investigator Name: Jennifer McComas, Ph.D. Investigator Departmental Affiliation: University of Minnesota Twin Cities Phone Number: 624-5854 Email Address: jmccomas@umn.edu Student Investigator Name: Rose Marie Jane A. Rementina Phone Number: 7632866801 Email Address: remen017@umn.edu Study Staff (if applicable): Phone Number: Email Address: Key Information About This Research Study The following is a short summary to help you decide whether or not to be a part of this research study. More detailed information is listed later on in this form. What is research? • The goal of research is to learn new things in order to help people in the future. Investigators learn things by following the same plan with a number of participants, so they do not usually make changes to the plan for individual research participants. You, as an individual, may or may not be helped by volunteering for a research study. Why am I being invited to take part in this research study? We are asking you to take part in this research study because you are an employed person with intellectual and developmental disabilities. We think that your insights can greatly help understand how preparation activities support post-school employment success. What should I know about a research study? • Someone will explain this research study to you. • Whether or not you take part is up to you. • You can choose not to take part. • You can agree to take part and later change your mind. • Your decision will not be held against you. • You can ask all the questions you want before you decide. 123 Why is this research being done? This study wants to explore the relevant experiences of persons with intellectual and developmental disabilities that prepare them to achieve post-school employment success including jobs or businesses. Given that there is a gap to many persons with disabilities in transitioning from school to work, the study wants to hear stories from the eligible participants about how they got ready for work after school and what helped them in gaining employment. It also wants to know how their strengths, needs, and culture were considered in transitioning out of school. The research results could potentially design inclusive programs for diverse needs, and the participants’ experiences may also assist in developing better practices and policies in the future for equal opportunities and success in the workforce for people with disabilities. How long will the research last? We expect that you will be in this research study for one interview session lasting between 45-60 minutes. What will I need to do to participate? You will be asked to answer a questionnaire asking about your profile and answer interview questions asking your experiences that supported your employment. More detailed information about the study procedures can be found under “What happens if I say yes, I want to be in this research?” Is there any way that being in this study could be bad for me? No risks are anticipated in this study as you will not be obligated to disclose personal circumstances unless you choose to do so willingly. It is plausible but not expected that you may experience discomfort if you share experiences related to your job-seeking struggles or other barriers during training and employment. However, barriers and struggles are not the topic of any questions or the interview; if the topic of struggles and barriers arises, it will be from your initiation. Will being in this study help me in any way? There are no benefits to you from your taking part in this research. We cannot promise any benefits to others from your taking part in this research. However, possible benefits to others include designing inclusive programs for diverse needs and assisting in developing better practices and policies in the future for equal opportunities and success in the workplace for people with disabilities. What happens if I do not want to be in this research? There are no known alternatives, other than deciding not to participate in this research study. Detailed Information About This Research Study The following is more detailed information about this study in addition to the information listed above. 124 How many people will be studied? We expect about 25 people will be in this research study nationally and internationally. What happens if I say “Yes, I want to be in this research”?
If you agree to join this study, you will be asked to complete a profile questionnaire and attend an interview for one session lasting for 45-60 minutes. Throughout the participation, you will interact with the student researcher at your most convenient schedule and location – workplace, residence, virtual meeting room, coffee shop, etc. We will also audio and/or video-record the interview; however, if you do not consent to being recorded in any way, the student researcher will try to write notes instead. We will also get back with you to present the results and to validate findings made. What happens if I say “Yes”, but I change my mind later? You can leave the research study at any time and no one will be upset by your decision. If you decide to leave the research study, contact the investigator so that the investigator can be informed about the reason for withdrawal and the researcher will retain the data gathered unless you ask for the data to be excluded from the study. Should you opt to proceed with the study again, the investigator will arrange for a new interview session considering the number of participants limit. What are the risks of being in this study? Is there any way being in this study could be bad for me? (Detailed Risks) The interview will primarily discuss your preparation for your job, and you can choose whether or not to share personal circumstances. While discussing difficult experiences during job preparation and training might be potentially discussed, we will not ask about them unless you wish to talk about them during the conversation. Will it cost me anything to participate in this research study? There will be no cost to you for any of the study activities or procedures. What happens to the information collected for the research? Efforts will be made to limit the use and disclosure of your personal information, including research study and medical records, to people who have a need to review this information. We cannot promise complete confidentiality. Organizations that may inspect and copy your information include the Institutional Review Board (IRB), the committee that provides ethical and regulatory oversight of research, and other representatives of this institution, including those that have responsibilities for monitoring or ensuring compliance. We may publish the results of this research or share the resulting data. However, we will keep your name and other identifying information confidential. What will be done with my data and specimens when this study is over. Your data will not be used for any future research after this study is complete. 125 Will anyone besides the study team be at my consent meeting? You may be informed by the study team that an auditor may observe your consent meeting. Observing the consent meeting is one way that the University of Minnesota makes sure that your rights as a research participant are protected. The auditor is there to observe the consent meeting, which will be carried out by the people on the study team. The auditor will not document any personal (e.g. name, date of birth) or confidential information about you. The auditor will not observe your consent meeting without your being informed ahead of time. Whom do I contact if I have questions, concerns or feedback about my experience? To reach the research team: Please see the “Investigator Contact Information” section at the beginning of this form. To reach someone outside of the research team: This research has been reviewed and approved by an IRB within the Human Research Protections Program (HRPP). To share feedback privately with the HRPP about your research experience, call the Research Participants’ Advocate Line at 612-625-1650 (Toll Free: 1-888-224-8636) or go to z.umn.edu/participants. You are encouraged to contact the HRPP if: • Your questions, concerns, or complaints are not being answered by the research team. • You are having difficulty reaching the research team. • You want to talk to someone besides the research team. • You have questions about your rights as a research participant. • You want to get information or provide feedback about this research. Will I have a chance to provide feedback after the study is over? The HRPP may ask you to complete a survey that asks about your experience as a research participant. You do not have to complete the survey if you do not want to. If you do choose to complete the survey, your responses will be anonymous. If you are not asked to complete a survey, but you would like to share feedback, please contact the study team or the HRPP. See the “Investigator Contact Information” of this form for study team contact information and “Whom do I contact if I have questions, concerns or feedback about my experience?” of this form for HRPP contact information. Will I be compensated for my participation? If you agree to take part in this research study, we will pay you a one-time payment of $50 for your time and effort. Optional Elements: The following research activities are optional, meaning that you do not have to agree to them in order to participate in the research study. Please indicate your willingness to participate in these optional activities by placing your initials next to each activity. about:blank 126 Yes, I agree No, I disagree _____ _____ The investigator may audio or video record me to aid with data analysis. The investigator will not share these recordings with anyone outside of the immediate study team. _____ _____ The investigator may audio or video record me for use in scholarly presentations or publications. My identity may be shared as part of this activity, although the investigator will attempt to limit such identification. I understand the risks associated with such identification. _____ _____ The investigator may contact me in the future to see whether I am interested in participating in other research studies by Jennifer McComas. Signature Block for Capable Adult: Your signature documents your permission to take part in this research. You will be provided a copy of this signed document. _______________________________________________ __________________ Signature of Participant Date _______________________________________________ Printed Name of Participant _________________________________________ __________________ Signature of Person Obtaining Consent Date ______________________________________________________ Printed Name of Person Obtaining Consent WITNESS STATEMENT: The participant was unable to read or sign this consent form because of the following reason: ☐ The participant is unable to read the information ☐ The participant is visually impaired ☐ The participant is non-English speaking ☐ The participant is physically unable to sign the consent form. Please describe: ______________________________________________________________________ ☐ Other (please specify):_________________________________________ ________ 127 For the Consent of Non-English Speaking Participants when an Interpreter is Used: As someone who understands both English and the language spoken by the subject, I represent that the English version of the consent form was presented orally to the subject in the subject’s own language, and that the subject was given the opportunity to ask questions. __________________________________________ __________________ Signature of Interpreter Date ___________________________________________ Printed Name of Interpreter OR: Statement from a Non-Interpreter: As someone who understands both English and the language spoken by the subject, I represent that the English version of the consent form was presented orally to the subject in the subject’s own language, and that the subject was given the opportunity to ask questions. __________________________________________ __________________ Signature of Individual Date ___________________________________________ Printed Name of Individual Signature Block for Adult Unable to Consent: Your signature documents your permission for the named participant to take part in this research. _____________________________________________ Printed Name of Participant _____________________________________________ ___________________ Signature of Legally Authorized Representative Date _____________________________________________ ___________________ Printed Name of Legally Authorized Representative Date _____________________________________________ ___________________ Signature of Person Obtaining Consent Date _____________________________________________ ___________________ Printed Name of Person Obtaining Consent Date 128 Appendix E Assent Form Sample University of Minnesota Assent to Participate in Research Title of Research Study: Exploring Culturally Responsive Preparation Activities for People with Disabilities: A Pathway to Achieving Post-School Employment Success Researcher: Jennifer McComas, Ph.D. Sponsor: What is research? Doctors and researchers are committed to your care and safety. There are important differences between research and treatment plans: • The goal of research is to learn new things in order to help people in the future. Researchers learn things by asking a question, making a plan, and testing it. Why am I being asked to take part in this research study? A research study is usually done to find a better way to treat people or to understand how things work. You are being asked to take part in this research study because you are an employed person with intellectual and developmental disabilities whose insights can greatly help understand how preparation activities support post-school employment success and potentially design inclusive programs for diverse needs. Your experiences may also assist in developing better practices and policies in the future for equal opportunities and success in the workplace for people with disabilities. What should I know about being in a research study? You do not have to be in this study if you do not want to do so. It is up to you if you want to participate and if you want to, talk to your parents about any questions or concerns you have about the study. You can choose not to take part now and change your mind later if you want. If you decide you do not want to be in this study, no one will be mad at you. You can ask all the questions you want before you decide. Why is this research being done? In this study, I want to find out more about your experiences finding a job or running a business after school and what things helped you. It also wants to know how people like you were supported, what you're good at, what you need, and what's important to you when getting ready for work. How long will the research last? I expect that you will be in this research study for one session that will last 45-60 minutes. 129 What happens if I say “Yes, I want to be in this research”? If it is okay with you and you agree to join this study, you will be asked to complete a profile questionnaire and attend an interview. Is there any way being in this study could be bad for me? The interview will mostly talk about how you got ready for your job and what helped you. You don't have to share personal things unless you want to. It is okay if talking about tough times makes you feel uneasy, but we will not ask about them. If you want to talk about challenges, it is up to you to bring it up. What happens to the information collected for the research? The researchers will share your information, including research study records, to only people who have a need to review this information. For example, sometimes researchers need to share information with the University or other people that work in research to make sure the researchers are following the rules. The researchers may publish the results of this research or share the resulting data. However, we will keep your name and other identifying information confidential. What else do I need to know? If you agree to take part in this research study, the researcher will give $50 compensation. Who can I talk to? For questions about research appointments, the research study, research results, or other concerns, call the study team at: Researcher Name: Jennifer McComas, Ph.D. Researcher Affiliation: University of Minnesota Twin Cities Phone Number: 624-5854 Email Address: jmccomas@umn.edu Student Investigator: Rose Marie Jane A. Rementina Phone Number: 7632866801 Email Address: remen017@umn.edu To reach the research team: Please see the “Investigator Contact Information” section above. To reach someone outside of the research team: This research has been reviewed and approved by an Institutional Review Board (IRB), a group of people that look at the research before it starts. This group is part of the Human Research Protection Program (HRPP). To share concerns privately with the HRPP about your research experience, call the Research Participants’ Advocate Line at 612-625-1650 (Toll Free: 1-888-224-8636) or go to z.umn.edu/participants. You are encouraged to contact the HRPP if: about:blank 130 ● Your questions, concerns, or complaints are not being answered by the research team. ● You are having difficulty reaching the research team. ● You want to talk to someone besides the research team or your parents. ● You have questions about your rights as a research participant. ● You want to get information or provide feedback about this research. Optional Elements: The following research activities are optional, meaning that you do not have to agree to them in order to participate in the research study. Place your initials by each statement below to let us know your willingness to participate in these activities that may be required or optional. I agree I disagree ______ ________ The researcher may audio or video record me to help do the research. The researcher will not share these recordings with anyone outside of the immediate study team, University, or other people that need to for the research. ______ ________ The researcher may audio or video record me for use in scholarly presentations or publications, like a journal article. My identity may be shared as part of this activity, although the researcher will attempt to limit the ability to identify me. I understand what it means if my identity in some way is shared with others. Signature Block for Participant to Assent ______________________________________________________ _______________ Signature of participant Date ______________________________________________________ Printed name of participant ______________________________________________________ _______________ Printed name of person obtaining assent Date ______________________________________________________ Signature of person obtaining assent 131 Appendix F International Consent Form Sample STU#: 00022161 International Data Privacy Notice & Consent Addendum Title of Research Study: Exploring Culturally Responsive Preparation Activities for People with Disabilities: A Pathway to Achieving Post-School Employment Success STU#: 00022161 Principal Investigator: Jennifer J. McComas, Ph.D. Supported By: University of Minnesota Twin Cities, Department of Educational Psychology You can find information related to the purpose of the research project, how it will be conducted and by whom from the primary consent form for this research project, which you should receive as a separate document (the “Primary Consent Form”). This document describes how your data will be collected, processed, and stored as a part of that research project. We (the research team and the University of Minnesota) are conducting and processing the personal information you share with us related to this research project on the basis of your consent. Please sign at the bottom to indicate that you have read and understood how your personal data will be processed, your related rights, and that you consent to the collection, processing, and storage of your data as described below. What data will be collected? We will collect personal data about you in connection with your participation in this research project, including: ● Your first name and contact information ● information you submit to us, including as part of research project forms, surveys, or questionnaires As a safeguard to protect your privacy, we pseudonymize (key-code) your personal data accessible by the principal investigator and student . Access to review the collected data will be limited to the faculty PI, the student PI, and study team members who are responsible for data coding. How will my data be used? We will use your personal information that you share with us for the purposes of this research project, including the purposes described in the Primary Consent Form. If the results of this research indicate that further studies might be beneficial, we may process your personal data for the purpose of extending our research in other fields or areas. 132 We will also use your personal information that you share with us to the extent necessary to comply with legal and regulatory requirements, including any requirements to share your personal data with regulatory agencies and government officials who have a duty to monitor and oversee research studies like this research project. Who will have access to the data? Your personal data may be shared with the following recipients: • University of Minnesota’s Box Secure Storage (box.umn.edu); • Organizations and individuals described in the Primary Consent Form as participating in the conduct or support of the research project or receiving data or results from the research project; • Third parties, including public authorities, for those situations where we have a legal obligation to do so, such as where we are required to share your personal data with regulatory agencies and government officials who have a duty to monitor and oversee research studies like this research project. How long will my data be retained? We will retain your personal data for as long as necessary to fulfill the purposes and uses described in this form, including for purposes of satisfying any legal, accounting, or reporting requirements. We may also keep your records if legally required or to fulfill another legitimate interest. How will my privacy be protected? The research team will transfer your data to our research site in the United States. The United States may not have the same laws to protect your personal data as the country or territory you reside in. Because of the need to release information to these parties, absolute confidentiality cannot be guaranteed and there are potential risks that information released to other parties may be released again. However, the research team is committed to protecting the confidentiality of your personal data. We comply with the University’s policies and procedures regarding the privacy and security of your personal data, in accordance with applicable state and federal law. More information is available here: UMN Health Information Privacy & Compliance Office. By signing this consent form, you acknowledge and consent to the collection, use, and disclosure of data about you to conduct this study in the ways described above. You also acknowledge and consent to the transfer of your personal data and other information to, and the processing of such data and information in, the United States. What if I decide not to sign this consent form? Your participation in this research study is voluntary. However, you will not be allowed to participate in this research if you do not sign this form. What if I change my mind? If you decide to withdraw your permission and end this agreement to release the information collected about you, please contact Jennifer McComas, https://healthprivacy.umn.edu/ 133 Ph.D, jmccomas@umn.edu. They will help you document in writing your decision to withdraw this permission. When you withdraw your consent, we will not collect additional information related to you. We may also erase the personal data we already collected. If you withdraw your consent, this will not affect the lawfulness or our collecting, use, and sharing of your personal data up to the point in time that you withdraw your consent. Even if you withdraw your consent, we may still use or maintain your personal data to comply with our legal and regulatory requirements. Who can I talk to if I have a question? This research has been reviewed and approved by the Institutional Review Board (IRB) at the University of Minnesota. If you have any concerns about how your personal data is being handled, please contact us using the information below. If you are not satisfied with our reply and how we protect your personal data, you may also contact the data protection authority in your home country or in another relevant jurisdiction for this processing activity. Contact Information If you have further questions or concerns regarding your data privacy and want to talk to someone besides the research team, you may alternatively contact the Institutional Review Board or the Health Information Privacy Compliance Office at UMN. • Institutional Review Board: (612) 626-5654 or irb@umn.edu • Health Information Privacy Compliance Office: (612) 624-7447 or privacy@umn.edu. Research Participant Consent I consent to the collection, processing, and storage of my data as described in this form. Signature Block for Capable Adult: Your signature documents your permission to take part in this research. You will be provided a copy of this signed document. ____________________________________________________ __________________ Signature of Participant Date ____________________________________________________ Printed Name of Participant ____________________________________________________ __________________ Signature of Person Obtaining Consent Date ____________________________________________________ Printed Name of Person Obtaining Consent mailto:jmccomas@umn.edu mailto:irb@umn.edu mailto:privacy@umn.edu 134 Signature Block for Witness: WITNESS STATEMENT: The participant was unable to read or sign this consent form because of the following reason: ☐ The participant is illiterate ☐ The participant is visually impaired ☐ The participant is physically unable to sign the consent form. Please describe: ______________________________________________________________________ ☐ Other (please specify): ______________________________________________________________________ For the Consent of Non-English Speaking Participants when an Interpreter is Used: As someone who understands both English and the language spoken by the subject, I represent that the English version of the consent form was presented orally to the subject in the subject’s own language, and that the subject was given the opportunity to ask questions. ____________________________________________________ __________________ Signature of Interpreter Date ____________________________________________________ Printed Name of Interpreter OR: Statement from a Non-Interpreter: As someone who understands both English and the language spoken by the subject, I represent that the English version of the consent form was presented orally to the subject in the subject’s own language, and that the subject was given the opportunity to ask questions. ____________________________________________________ __________________ Signature of Individual Date ___________________________________________________ Printed Name of Individual 135 Signature Block for Adult Unable to Consent: Your signature documents your permission for the named participant to take part in this research. ____________________________________________________ Printed Name of Participant ____________________________________________________ __________________ Signature of Legally Authorized Representative Date ____________________________________________________ __________________ Printed Name of Legally Authorized Representative Date ____________________________________________________ __________________ Signature of Person Obtaining Consent Date ____________________________________________________ __________________ Printed Name of Person Obtaining Consent Date 136 Appendix G IRB Research Approval 137 138