Our body, Our health Quantitative Metadata
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2021-09-10
2023-04-14
2023-04-14
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2024-6-30
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Title
Our body, Our health Quantitative Metadata
Published Date
2024-04-15
Author Contact
Connor , Jennier
conno043@umn.edu
conno043@umn.edu
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Dataset
Survey Data-Quantitative
Survey Data-Quantitative
Abstract
The National Pain Strategy notes the importance of addressing pain in minority populations to reduce health disparities. One such population is female refugees who have been victim to female genital cutting (FGC) --- which is known to cause sexual pain. The objective of the proposed research is to collect empirical data to (1) inform the conceptualization of sexual pain and other outcomes among Somali women living in Minnesota who have experienced FGC, (2) promote healthcare practices that minimize sexual pain, and (3) develop decision- making tool(s) and education seminars driven by study findings. The majority of Somali girls undergo infibulation when originally cut, which involves stitching the vaginal opening shut. Deinfibulation (i.e. opening the circumcision/infibulation scar) may decrease pain and is necessary before vaginal birth. It is recommended before labor and delivery; however, many patients wait until labor and delivery to undergo deinfibulation – thus increasing a risk in tears. Little is known about how sexual pain and sexual function are impacted by the timing of deinfibulation. To better understand sexual pain in relation to FGC, this study relied upon conceptual models that utilize a biopsychosocial approach, integrating biological, psychological, and cultural considerations. These models include fear-avoidance, endurance, and resilience. We partnered with a community-based organization (SoLaHmo) to conduct 75 qualitative interviews of Somali-American married women 18-45 years who have experienced FGC to accomplish the following aims: Aim 1: Qualitatively investigate sexual pain characteristics and meaning ascribed to sexual pain. Aim 2: Establish reference levels using descriptive statistics to quantify sexual pain characteristics (presence, frequency, intensity), sexual function, pain responses (fear avoidance, endurance, resilience), and moderator variables (acculturation and shared decision making) in this population. Aim 3: Among women who have vaginally delivered one or more babies, determine if sexual pain characteristics and sexual function are associated with the timing of deinfibulation with first child. Aim 4: Among women reporting sexual pain in Aim 3, determine if pain responses (fear avoidance, endurance, resilience) are associated with sexual pain and sexual function, and whether these associations are modified by degree of acculturation --- while adjusting for timing of deinfibulation.
Description
This record is related to the quantitative arm of the study. 300 Somali women completed a survey on a touchscreen laptop computer using NOVA Research Company (QDS v5.0) Audio-Computer-Assisted Self-Interviewing (ACASI). Participants completed the survey at a location of their choice (home, clinic, office). Participants were recruited in the community or at Smiley's Family Medicine and Community-University Health Care Center (CUHCC). 203 (67%) interviews were completed in Somali. Data collected was on circumcision, genital history, pain, sexual, psychological, and sociodemographic variables. This record contains supporting metadata files: study protocol, quantitative data dictionary and coding tree, survey instrument, recruitment processes, and interview processes. Due to the sensitive nature of the study and informed consent process, the data cannot be released for any reason. The raw data is stored at the Institute for Sexual and Gender Health at the University of Minnesota Medical School.
Referenced by
Study website: http://jirkeena.umn.edu/
Creger, J., Abdikeir, K., Kaczmsrczik, K., Chaisson, N., Johnson-Agbakwu, C. E., Robinson, B. B. E., & Connor, J. J. (online first, 2024). The need for standardized nomenclature in documentation of female genital cutting in health records. Journal of Immigrant and Minority Health. https://doi.org/10.1007/s10903-024-01595-5
Connor, J. J., Abdikeir, K., Chaisson, N., Brady, S., Chen, M., Abdi, C., Salad, M., Johnson-Agbakwu, C. E., Hussein, I., Afey, F., Pergament, S., & Robinson, B. B. E. (in press, 2024). Discerning Deinfibulation: Impact of personal, professional, and familial influences on decision-making. Qualitative Health Research.
Connor, J. J., Abdi, C., Chen, M., Salad, M., Pergament, S., Afey, F., Hussein, I., & Robinson, B. B. E. (online first, 2023). Our Body Our Health (Jirkeena, Caafimaadkeena): Somali women’s narratives on sexual health. Journal of Sex Research. https://doi.org/10.1080/00224499.2023.2288077
Johnson-Agbakwu, C. E., Chen, M., Salad, M., Chaisson, N., Connor, J. J., & Robinson, B. B. E. (2023). Female Genital cutting type: Proposing a multifaceted, interactive method for increasing accuracy of self-assessment. Journal of Sexual Medicine, 20(11), 1292-1300. https://doi.org/10.1093/jsxmed/qdad101
Chaisson, N., Johnson-Agbakwu, C. E., Finch, A., Salad, M., Connor, J. J., Chen, M., & Robinson, B. B. E. (2023). Beautiful vulvas: Expanding illustrative visual imagery of Female Genital Cutting (FGC) types. Journal of Sexual Medicine, 20(11), 1301-1311. https://doi.org/10.1093/jsxmed/qdad102
Connor, J. J., Brady, S. S., Chaisson, N., Mohamed, F. S., & Robinson, B. B. E. (2021). Response to commentaries: Understanding women’s responses to sexual pain after female genital cutting. Archives of Sexual Behavior, 50(5), 1907-1912. https://doi.org/10.1007/s10508-021-02047-z
Connor, J. J., Brady, S .S., Chaisson, N., Mohamed F. S., & Robinson, B. B. E. (2021). Understanding women’s responses to sexual pain after female genital cutting: An integrative psychological pain response model. Archives of Sexual Behavior, 50(5), 1859-1869. https://doi.org/10.1007/s10508-019-1422-9
Brady, S. S., Connor, J. J., Chaisson, N., Mohamed, F. S., & Robinson, B. B. E. (2021). Response to commentaries: Applying the Theory of Planned Behavior to female genital cutting and deinfibulation. Archives of Sexual Behavior, 50(5), 1963-1971. https://doi.org/10.1007/s10508-021-02067-9
Brady, S. S., Connor, J. J., Chaisson, N., Mohamed, F. S., & Robinson, B. B. E. (2021). Female genital cutting and deinfibulation: Applying the Theory of Planned Behavior to research and practice. Archives of Sexual Behavior, 50(5), 1913-1927. https://doi.org/10.1007/s10508-019-1427-4
Robinson, Beatrice; Connor, Jennifer. (2023). Our body, Our health: Qualitative Metadata. Retrieved from the Data Repository for the University of Minnesota, https://doi.org/10.13020/DKB8-E892.
Creger, J., Abdikeir, K., Kaczmsrczik, K., Chaisson, N., Johnson-Agbakwu, C. E., Robinson, B. B. E., & Connor, J. J. (online first, 2024). The need for standardized nomenclature in documentation of female genital cutting in health records. Journal of Immigrant and Minority Health. https://doi.org/10.1007/s10903-024-01595-5
Connor, J. J., Abdikeir, K., Chaisson, N., Brady, S., Chen, M., Abdi, C., Salad, M., Johnson-Agbakwu, C. E., Hussein, I., Afey, F., Pergament, S., & Robinson, B. B. E. (in press, 2024). Discerning Deinfibulation: Impact of personal, professional, and familial influences on decision-making. Qualitative Health Research.
Connor, J. J., Abdi, C., Chen, M., Salad, M., Pergament, S., Afey, F., Hussein, I., & Robinson, B. B. E. (online first, 2023). Our Body Our Health (Jirkeena, Caafimaadkeena): Somali women’s narratives on sexual health. Journal of Sex Research. https://doi.org/10.1080/00224499.2023.2288077
Johnson-Agbakwu, C. E., Chen, M., Salad, M., Chaisson, N., Connor, J. J., & Robinson, B. B. E. (2023). Female Genital cutting type: Proposing a multifaceted, interactive method for increasing accuracy of self-assessment. Journal of Sexual Medicine, 20(11), 1292-1300. https://doi.org/10.1093/jsxmed/qdad101
Chaisson, N., Johnson-Agbakwu, C. E., Finch, A., Salad, M., Connor, J. J., Chen, M., & Robinson, B. B. E. (2023). Beautiful vulvas: Expanding illustrative visual imagery of Female Genital Cutting (FGC) types. Journal of Sexual Medicine, 20(11), 1301-1311. https://doi.org/10.1093/jsxmed/qdad102
Connor, J. J., Brady, S. S., Chaisson, N., Mohamed, F. S., & Robinson, B. B. E. (2021). Response to commentaries: Understanding women’s responses to sexual pain after female genital cutting. Archives of Sexual Behavior, 50(5), 1907-1912. https://doi.org/10.1007/s10508-021-02047-z
Connor, J. J., Brady, S .S., Chaisson, N., Mohamed F. S., & Robinson, B. B. E. (2021). Understanding women’s responses to sexual pain after female genital cutting: An integrative psychological pain response model. Archives of Sexual Behavior, 50(5), 1859-1869. https://doi.org/10.1007/s10508-019-1422-9
Brady, S. S., Connor, J. J., Chaisson, N., Mohamed, F. S., & Robinson, B. B. E. (2021). Response to commentaries: Applying the Theory of Planned Behavior to female genital cutting and deinfibulation. Archives of Sexual Behavior, 50(5), 1963-1971. https://doi.org/10.1007/s10508-021-02067-9
Brady, S. S., Connor, J. J., Chaisson, N., Mohamed, F. S., & Robinson, B. B. E. (2021). Female genital cutting and deinfibulation: Applying the Theory of Planned Behavior to research and practice. Archives of Sexual Behavior, 50(5), 1913-1927. https://doi.org/10.1007/s10508-019-1427-4
Robinson, Beatrice; Connor, Jennifer. (2023). Our body, Our health: Qualitative Metadata. Retrieved from the Data Repository for the University of Minnesota, https://doi.org/10.13020/DKB8-E892.
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National Institute of Health- Eunice Kennedy Shriver National Institute of Child Health Institute & Human Development
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Robinson, Beatrice "Bean"; Connor, Jennifer. (2024). Our body, Our health Quantitative Metadata. Retrieved from the Data Repository for the University of Minnesota (DRUM), https://doi.org/10.13020/R296-0G60.
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Badge card.pdf
educational tools
(3.65 MB)
CopingWithSexualPain Tip Sheet.pdf
educational tools
(548.3 KB)
DRUM_ACASI Data Management Plan.docx
data management plan
(22.88 KB)
DRUM_Data Collection Timeline.docx
timeline
(14.66 KB)
DRUM_Goal and Performance Tracking.xlsx
tracking sheet
(37.11 KB)
DRUM_Interviewer ACASI Guide.docx
guidebook
(286.94 KB)
DRUM_Recruiter Log & contact form.doc
recruiter materials
(57.5 KB)
DRUM_Recruitment plan.docx
recruiter materials
(38.42 KB)
DRUM_Recruitment protocol & script.doc
recruiter materials
(91 KB)
Lubrication Tip Sheet.pdf
educational tools
(620.44 KB)
NotPregnant_Patient_Deinfibulation Decision Making Aid- Patient Version Tip Sheet.pdf
educational tools
(823.45 KB)
OBOH Study 2 ACASI Survey Questions.docx
quantitative survey
(344.89 KB)
PelvicPhysical_Therapist Tip Sheet.pdf
educational tools
(561.16 KB)
Pregnant_Patient_Deinfibulation Decision Making Aid Tip Sheet.pdf
educational tools
(794.73 KB)
ProviderVersion_DeinbulationNotPregnant Tip Sheet.pdf
educational tools
(836.39 KB)
ProviderVersion_DeinbulationPregnant Tip Sheet.pdf
educational tools
(804.96 KB)
SOCIAL TEMPLATE PROTOCOL FGC&Sexual Pain.docx
study protocol
(125.61 KB)
DRUM_Instruments_and_References.pdf
surveys used and their citations
(94.24 KB)
DRUM_codebook.pdf
codebook
(1.09 MB)
Readme_quant_metadata.txt
Readme file
(11.25 KB)
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