When families are faced with a chronic disease in one of their elders how do they respond? What do the professionals they work with suggest? This 1996 study, the first to examine family decision making about how to finance nursing home care, conducted in-depth interviews with forty-five families faced with Parkinson's disease and Alzheimer's. It also interviewed sixty-five professionals--attorneys, financial planners, nursing home social workers, and Medicaid eligibility workers. In addition, both families and professionals were asked their opinions about a number of controversial issues relating to long term care including the roles of individuals and the government in paying for it. Medicaid estate planning was not a prevalent practice among those interviewed. Study findings include the goals of families in caring for their elders, how care needs are met, and how nursing home expenses are paid. Public policy implications are explicitly laid out.
Supported by an Interactive Research Grant from CURA and a College of Human Ecology Outreach Grant.
Stum, Marlene; Brouwer, Estelle.
Financing Long Term Care: Dilemmas and Decisions Facing the Elderly, Family Members, and Society..
Center for Urban and Regional Affairs, University of Minnesota.
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