An individual’s choice to share or have control of the sharing or withholding of their personal health information is one of the most significant public policy challenges associated with electronic information exchange. There were four aims of this study. First, to describe predictors of health data sharing preferences of consumers. Second, to test a hypothesized path diagram to understand the strength, path, and direction of relationships between and among the constructs of information privacy, data security, data sharing preferences, and consumer-mediated exchange (C-ME). Third, to create a theoretical model. Fourth, to make recommendations describing data governance structures needed for personally identifiable information in consumer-mediated data management. Study findings indicate two levels of health data sharing preferences exist (a) sharing between providers and (b) personal access to health information. The theoretical model showed data security and information privacy have a positive, direct relationship on consumer health data sharing preferences with respect to the types of data and mechanisms used to share personally identifiable health information. Results of this study were used to propose an integrated system approach to design, management, and control of consumer-mediated data management.
University of Minnesota Ph.D. dissertation. May 2017. Major: Nursing. Advisors: Connie White Delaney, Daniel Pesut. 1 computer file (PDF); vi, 136 pages.
Health Data Sharing Preferences of Consumers: Public Policy and Legal Implications of Consumer-Mediated Data Management.
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