Browsing by Author "Estrella, Emma"
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Item Fall 2021 University of Minnesota College of Liberal Arts First-Year Student Surveys(2022-01-07) Estrella, Emma; Davis, Cassandra N; Mody, Isha; DeWitt, Katie; Roy, Aarushi; Yan, Chenwei; Hines, Alexander; Hammell, Abbey E; Hofelich Mohr, Alicia; Ronning, Emily; estre059@umn.edu; Estrella, Emma; University of Minnesota Office of Student Experience; Liberal Arts Technologies and Innovation ServicesThis data is from two surveys distributed to first-year students in the College of Liberal Arts at the University of Minnesota. The surveys include questions about the value based on one's identity, comfortability with various tasks related to transitioning to college, sense of belonging in various campus communities, identity, discrimination, mentorship, Canvas use, and demographic identifiers. Survey 1 was sent at the beginning of the Fall 2021 semester, and Survey 2 was sent at the end. The aim of these surveys were to better understand the first-year experience for students, including the transition to college and campus climate.Item Healthcare Experiences Among Adults with Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder in the United States(Taylor and Francis, 2023) Estrella, Emma; Frazier, PatriciaPurpose: This cross-sectional mixed-method study examined healthcare experiences among individuals in the US with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD), genetic connective tissue disorders. We hypothesized that many individuals with these conditions would report low satisfaction with healthcare and low health-related quality of life, and that lower healthcare satisfaction would be related to lower health-related quality of life and self-efficacy for symptom management. Methods: Adults living in the US with hEDS or HSD (N = 2,125) completed an online survey assessing satisfaction with healthcare, health-related quality of life, and symptom management self-efficacy. Qualitative data also were gathered on desired changes to improve healthcare. Results: Participants reported low satisfaction with healthcare and lower health-related quality of life and symptom management self-efficacy than norm groups. Lower satisfaction with healthcare was associated with lower health-related quality of life and lower symptom management self-efficacy, ps <.001. The most common desired change to improve healthcare was more knowledge about hEDS and HSD among healthcare professionals. Conclusions: U.S. adults with joint hypermobility report negative healthcare experiences and poor health-related quality of life. Future research should explore ways to improve the healthcare experiences and quality of care for individuals with hEDS and HSD.Item Spring 2022 University of Minnesota College of Liberal Arts First-Year Student Surveys(2022-06-09) Estrella, Emma; Voss, Ethan; Mody, Isha; DeWitt, Katie; Roy, Aarushi; Yan, Chenwei; Hammell, Abbey E; Hofelich Mohr, Alicia; Hines, Alexander; Ronning, Emily; estre059@umn.edu; Estrella, Emma; University of Minnesota Office of Student Experience; Liberal Arts Technologies and Innovation ServicesThis data is from two surveys distributed to first-year students in the College of Liberal Arts at the University of Minnesota. The surveys include questions about the value based on one's identity, comfortability with various tasks related to transitioning to college, academic support networks, use of academic services, sense of belonging in various campus communities, identity, discrimination, mentorship, Canvas use, and demographic identifiers. Survey 1 was sent at the beginning of the Spring 2022 semester, and Survey 2 was sent at the end. The aim of these surveys were to better understand the first-year experience for students, including the transition to college and campus climate.